NPR

If Your Medical Information Becomes A Moneymaker, Could You Get A Cut?

Sometimes discoveries derived from patients' medical data become the foundation of new profit-making companies. A fledgling industry wants to help patients get a cut of the cash.
According to the law in most states, health care providers own patients' medical records. But federal privacy law governs how that information can be used. And whether or not you can profit from your own medical data is murky.

Hospitals and health plans are increasingly using the huge amount of medical data they collect for research. It's a business worth billions of dollars, and sometimes those discoveries can be the foundation of new profit-making products and companies.

When a company profits from your data, should you get a cut?

This isn't just a hypothetical question. When Steven Petrow was 26 years old, back in 1984, he was treated for testicular cancer at Memorial Sloan Kettering Cancer Center in New York City.

"At that time I know a lot of lymph nodes and other bodily

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