NPR

If you donate DNA, what should scientists give in return? A 'pathbreaking' new model

That's how a prominent medical ethicist describes a researcher's innovative plan to share study results with participants in Kenya.
Each person depicted in the poster wears a necklace of beads meant to represent DNA they share with others in the study.


Anthropologist Carla Handley is sitting cross-legged in a mud-walled house in a Kenyan village called Merti. She's meeting with a man dressed in a flowing blue robe and a woven cap of red and white. His name is Wario Bala and he's a member of Kenya's Borana ethnic group, a nomadic people who raise cattle across Kenya's northern regions.

Handley introduces herself, then adds that she's "known locally as Chaltu Jillo Hanti" – the Borana language name bestowed on her by elders in the community. An interpreter translates and Wala laughs approvingly.

Then Handley points to a poster she's brought with pictures on it.

"You see here we have this small brush?" she says. Bala – who never went to school and doesn't know how to read – peers closely at the picture and nods.

"So do you remember in 2017," continues Handley, "when I was here, I was using a brush to rub the inside of people's cheeks? This was the brush I used."

Handley, a research associate with Arizona State University, is doing this presentation to fulfill a promise she made seven years ago, when she teamed up with some geneticists at her university for a study requiring the collection of DNA samples from nearly 600 people.

Back then, says Handley, the elders in the community had made a request that's almost

You’re reading a preview, subscribe to read more.

More from NPR

NPR2 min read
U.S. Troops And Equipment Will Leave Niger By Mid-September, The Pentagon Says
Niger's decision to kick out American forces dealt a blow to U.S. military operations in the Sahel. U.S. troops and some gear already have begun leaving the country.
NPR1 min read
Don't Fight Back
In 1964, the Birmingham Barons become Alabama's first integrated sports team. This is 17 years after Jackie Robinson integrated the Major Leagues. What took so long?Today, we hear how baseball helps desegregate America's most segregated city. Roy Woo
NPR1 min read
New Music Friday: The best albums out June 14
This week, NPR Music's Daoud Tyler-Ameen and Ann Powers steer the New Music Friday podcast straight into the oncoming Father's Day weekend, following the lead of country superstar Luke Combs, whose new album Fathers & Sons is a heartfelt meditati

Related