Australian Women’s Weekly NZ

“So Long As I’m Alive, I’m Grateful” Elly-May Barnes

Elly-May Barnes is picking tomatoes from her backyard veggie patch. She’s wearing a white broderie anglaise and tulle mini dress and silver lurex boots – not your standard gardening attire. But Elly-May is not your standard woman. Everyone who knows her says she’s something special. She always has been.

“I’ve never done things in a small way. I mean, I was born and nearly died,” she says, and she laughs. The 34-year-old singer/songwriter has a wicked, dark sense of humour, but at the time – born 14 weeks premature, the youngest of Australian rock royalty Jimmy and Jane Barnes’ four children – Elly-May’s life hung in the balance. It was no laughing matter.

“It was probably the most difficult time in my life,” Jane told The Weekly in 2021. “When something like that happens, which is beyond your control, when your child might die ... They would take her bloods every two hours, she had cannulas all through her body. They said to us there was a 50 per cent chance of this baby surviving. Anything else you’ve been through in your life is ... It really puts life in perspective.”

Jane and Jimmy stayed with Elly-May day and night. Sometimes Jimmy slept on the floor beside her humidicrib.

“They saved my life,” Elly-May says now. “They were there from the beginning, making sure I stayed alive in that hospital, and every time I’ve been in hospital since. I wouldn’t be here today without them.”

Jimmy and Jane finally brought their tiny girl home, but Elly-May wasn’t out of the woods yet. At three years old, she was diagnosed with cerebral palsy, which is a

You’re reading a preview, subscribe to read more.

More from Australian Women’s Weekly NZ

Australian Women’s Weekly NZ2 min read
Health News
Some of our favourite songs make us sad – and that could be exactly why we like them. A new study published in the journal Plos One suggests negative emotions felt when listening to music can actually produce pleasure. The author of the study, Profes
Australian Women’s Weekly NZ1 min read
Test Kitchen Know How...
Choose fennel that still has its tops, doesn’t have any discolouration or bruising on the bulb and is heavy for its size. Refrigerate, unwashed, wrapped in a vegie storage bag to retain freshness for about five days. To prepare, wash well in cold wa
Australian Women’s Weekly NZ5 min read
Winter Dinner Winners
Shaoxing wine is made from rice and is an essential ingredient in most Chinese savoury dishes. Chinese sesame paste is made from toasted sesame seeds, you can use a dark-roast peanut butter as an alternative. Chinese black vinegar has a malty taste s

Related Books & Audiobooks