Ebook224 pages3 hours
Managing Sickle Cell Disease: In Low-Income Families
By Shirley Hill
Rating: 2 out of 5 stars
2/5
()
About this ebook
As many as 30,000 African Americans have sickle cell disease (SCD). Though the political activism of the 1960s and a major 1970s health campaign spurred demands for testing, treatment, and education programs, little attention has been given to how families cope with SCD. This first study to give SCD a social, economic, and cultural context documents the daily lives of families living with this threatening illness. Specifically, Shirley A. Hill examines how low-income African American mothers with children suffering from this hereditary, incurable, and chronically painful disease, react to the diagnosis and manage their family's health care.The 23 mostly single mothers Hill studies survive in an inner-city world of social inequality. Despite limited means, they actively participate, create, and define the social world they live in, their reality shaped by day-to-day caregiving. These women overcome obstacles by utilizing such viable alternatives as sharing child care with relatives within established kinship networks.Highlighting the role of class, race, and gender in the illness experience, Hill interprets how these women reject, redefine, or modify the objective scientific facts about SCD. She acknowledges and explains the relevance of child-bearing and motherhood to African American women's identity, revealing how the revelation of the SCD trait or the diagnosis of one child often does not affect a woman's interpretation of her reproductive rights.
Related to Managing Sickle Cell Disease
Related ebooks
The Monster Within Me: Surviving Sickle Cell Disease Rating: 5 out of 5 stars5/5ABC's of Sickle Cell Disease Rating: 0 out of 5 stars0 ratingsFacing Two Sickles: Families Dealing with Sickle-Cell Disease Rating: 0 out of 5 stars0 ratingsCritique on Lean In and Sheryl Sandberg Rating: 0 out of 5 stars0 ratingsWhat Mommy Never Told You: A Woman's Guide to the Next Phase of Life Rating: 0 out of 5 stars0 ratingsFrom Dating to Commitment: Guide to Building a Lasting Relationship Rating: 0 out of 5 stars0 ratingsWinning the Race to Unity: Is Racial Reconciliation Really Working? Rating: 0 out of 5 stars0 ratingsFriendship Matters Rating: 0 out of 5 stars0 ratingsIn the Shadow of Illness: Parents and Siblings of the Chronically Ill Child Rating: 0 out of 5 stars0 ratingsDES Daughters, Embodied Knowledge, and the Transformation of Women's Health Politics in the Late Twentieth Century Rating: 0 out of 5 stars0 ratingsCalling the Shots: Why Parents Reject Vaccines Rating: 0 out of 5 stars0 ratingsLethal Decisions: The Unnecessary Deaths of Women and Children from HIV/AIDS Rating: 0 out of 5 stars0 ratingsInvisible Caregivers: Older Adults Raising Children in the Wake of HIV/AIDS Rating: 0 out of 5 stars0 ratingsYour Kids at Risk: How Teen Sex Threatens Our Sons and Daughters Rating: 5 out of 5 stars5/5Summary of Damon Tweedy's Black Man in a White Coat Rating: 0 out of 5 stars0 ratingsRemaking a Life: How Women Living with HIV/AIDS Confront Inequality Rating: 0 out of 5 stars0 ratingsDaddy's Special Little Girl Rating: 0 out of 5 stars0 ratingsDr. Dan's Last Word on Babies and Other Humans Rating: 0 out of 5 stars0 ratingsThe Children in Child Health: Negotiating Young Lives and Health in New Zealand Rating: 0 out of 5 stars0 ratingsDamaged Goods?: Women Living With Incurable Sexually Transmitted Diseases Rating: 5 out of 5 stars5/5Empathy, Childhood Trauma and Trauma History as a Moderator Rating: 0 out of 5 stars0 ratingsThe Rare Disease Gazette #19: Taking care of caregivers Rating: 0 out of 5 stars0 ratingsThe Boy Who Wasn’t Short: human stories from the revolution in genetic medicine Rating: 0 out of 5 stars0 ratingsConnecting the Dots: Palatal Myoclonus, Glossopharyngeal Neuralgia, Eagle Syndrome, Lyme Disease, and Babesia Rating: 0 out of 5 stars0 ratingsPurple Canary Rating: 0 out of 5 stars0 ratingsThe Code Breaker -- Young Readers Edition: Jennifer Doudna and the Race to Understand Our Genetic Code Rating: 3 out of 5 stars3/5Epilepsy in the Family Rating: 0 out of 5 stars0 ratingsThe China-US Partnership to Prevent Spina Bifida: The Evolution of a Landmark Epidemiological Study Rating: 0 out of 5 stars0 ratings
Social Science For You
Dumbing Us Down - 25th Anniversary Edition: The Hidden Curriculum of Compulsory Schooling Rating: 4 out of 5 stars4/5A People's History of the United States Rating: 4 out of 5 stars4/5The Denial of Death Rating: 4 out of 5 stars4/5All About Love: New Visions Rating: 4 out of 5 stars4/5Men Explain Things to Me Rating: 4 out of 5 stars4/5Come As You Are: Revised and Updated: The Surprising New Science That Will Transform Your Sex Life Rating: 4 out of 5 stars4/5You're Not Listening: What You're Missing and Why It Matters Rating: 4 out of 5 stars4/5The Art of Witty Banter: Be Clever, Quick, & Magnetic Rating: 4 out of 5 stars4/5The Sun Does Shine: How I Found Life and Freedom on Death Row (Oprah's Book Club Selection) Rating: 4 out of 5 stars4/5The Like Switch: An Ex-FBI Agent's Guide to Influencing, Attracting, and Winning People Over Rating: 4 out of 5 stars4/5Prisoners of Geography: Ten Maps That Explain Everything About the World Rating: 4 out of 5 stars4/5Verbal Judo, Second Edition: The Gentle Art of Persuasion Rating: 4 out of 5 stars4/5Just Mercy: a story of justice and redemption Rating: 5 out of 5 stars5/5Close Encounters with Addiction Rating: 5 out of 5 stars5/5Slaves in the Family Rating: 4 out of 5 stars4/5My Secret Garden: Women's Sexual Fantasies Rating: 4 out of 5 stars4/5Fervent: A Woman's Battle Plan to Serious, Specific, and Strategic Prayer Rating: 5 out of 5 stars5/5Homicide: A Year on the Killing Streets Rating: 4 out of 5 stars4/5Women Don't Owe You Pretty Rating: 4 out of 5 stars4/5King, Warrior, Magician, Lover: Rediscovering the Archetypes of the Mature Masculine Rating: 4 out of 5 stars4/5
Reviews for Managing Sickle Cell Disease
Rating: 2 out of 5 stars
2/5
1 rating0 reviews
Book preview
Managing Sickle Cell Disease - Shirley Hill
Enjoying the preview?
Page 1 of 1