My Journey with the Purple Dragon: Living with Leiomyosarcoma, a Rare and Aggressive Cancer
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About this ebook
Patricias world turned upside down when she was accidentally diagnosed with Leiomyosarcoma (LMS), an extremely rare cancer affecting only 1 in 5 million people. LMS is also a very aggressive type of tumor, thus nicknamed the Purple Dragon.
After the initial shock of the diagnosis subsided, Patricia was ready to discover ways to heal herself and find hope. She went from being a counselor to thousands of patients on how to be proactive and take charge of their own health, to taking unknown paths in search of hope for surviving a disease that does not have a single established medical treatment. She embarked on a spiritual journey, which took her to Omega Institute, Bali and Brazil, where she met healers, a guru, a physician and other extraordinary people who became instrumental in her finding peace within and starting to believe that everything can be healed, even the Purple Dragon.
Born in Brazil, Patricia moved to the United States at age 20. She has a Master of Nutrition Science from the University of California, Davis, and has worked as a university professor, researcher, speaker, clinical dietitian and diabetes educator. She is also the proud mother of three children (including an angel in heaven) and the founder of Helping Children Heal (HCH), an NGO that provides medical treatment for impoverished and sick children who dont have health care. Patricia is a world traveler, having backpacked solo in Tibet, Nepal, Vietnam, Cambodia, Laos, Namibia, India and many other countries.
Above all she is a proactive woman who has been inspiring many as she travels the paths of healing and discoveries, keeping alive the flame of faith that even the Purple Dragon can be tamed.
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My Journey with the Purple Dragon - Patricia Moreira-Cali
Copyright © 2014 Patricia Moreira-Cali.
All rights reserved. No part of this book may be used or reproduced by any means, graphic, electronic, or mechanical, including photocopying, recording, taping or by any information storage retrieval system without the written permission of the publisher except in the case of brief quotations embodied in critical articles and reviews.
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Because of the dynamic nature of the Internet, any web addresses or links contained in this book may have changed since publication and may no longer be valid. The views expressed in this work are solely those of the author and do not necessarily reflect the views of the publisher, and the publisher hereby disclaims any responsibility for them.
The author of this book does not dispense medical advice or prescribe the use of any technique as a form of treatment for physical, emotional, or medical problems without the advice of a physician, either directly or indirectly. The intent of the author is only to offer information of a general nature to help you in your quest for emotional and spiritual well-being. In the event you use any of the information in this book for yourself, which is your constitutional right, the author and the publisher assume no responsibility for your actions.
Any people depicted in stock imagery provided by Thinkstock are models, and such images are being used for illustrative purposes only.
Certain stock imagery © Thinkstock.
ISBN: 978-1-4525-1757-5 (sc)
ISBN: 978-1-4525-1759-9 (hc)
ISBN: 978-1-4525-1758-2 (e)
Library of Congress Control Number: 2014912393
Balboa Press rev. date: 11/24/2014
Contents
Foreword
Preface
July 29, 2013 - Flying From Home To Abadiˆania, Brazil
The Catalyst: An Unexpected Diagnosis
November 2012 – The Routine Checkup
December 2012 - Good News: No Growth of Fibroids
March 2013 – Not So Good News: Gray Area Growth of One Fibroid
March 20, 2013 – To Brazil I Go, to Celebrate My Mother
April 1, 2013 - April’s Fool Day Brought Me No Joke
April 17, 2013 – Robotic Surgery
April 23, 2013: And From This Day on My Life Changes Forever. I Am Introduced to the Purple Dragon.
April 25, 2013 – The First Oncologist appointment of Many (Forever) Ones
April 24-30, 2013 – Time of Deep Grieving
Meditation and Relaxation for Acceptance and Healing
May 3, 2013 – Sarcoma Center and My Sister Goes Back Home
May 4, 2013 – Still Haven’t Shared The Dragon News
Back to Work, Trying to Add Some Normalcy in My New Life… Not Easy
May 16, 2013 – Third Opinion at Mayo Clinic, Jacksonville, Florida
Opening Up About the Cancer and Reaching Out for Support: Extremely Essential
May 29, 2013 – Support Starts to Flow from Different Parts of the World
Let The Coincidences Unleash
June 1, 2013 – Coincidences
Abound and I Am Introduced to the Unknown
June 6-10, 2013 – John of God Appears on My Radar
June 14, 2013 – Friends
June 20-22, 2013 – Visiting a Very Special Family in South Carolina
June 23, 2013 – More Encouragement to Search for John of God and Finding Dr. Weiss (Who Later Tells me, There are No Coincidences
)
Going to MD Anderson Cancer Center
June 26, 2013 - And The Cats
Sneak into My Life
June 25, 2013 – At Third Sarcoma Center
Family Trip to Central America and Practicing Courage
Miracle Happens Workshop and too Many Coincidences
to be Ignored
July 12, 2013 – Omega Institute with Dr. Weiss and Doing Regression!
July 13, 2013 - Day 2 at Omega: The Cat
Re-Appears and Dr. Weiss Talks to Me!
July 14, 2013: Guided to Go Further in Time and Going Back Home
Searching For and Finding John of God
July 21, 2013 – Getting More Unexpected Encouragement to Go See John of God
No Signs of the Dragon and My Collection of Number 23
July 29, 2013 – Introduction to Spiritism
And To Brazil I Go To Meet The Healer John Of God
July 30, 2013 - Arrival in Abadiânia to Meet John of God and More Cats Appear
Introduction to the Casa & John of God
My Spiritual Surgery
August 2, 2013 - The Day After the Spiritual Surgery
August 3, 2013 – It’s Quiet in Abadiânia on Non-Casa Days
August 4, 201³ _ Going to The Waterfall and Starting to Let Go of Resentment
August 5, 2013 – Frightening and Unexplained Pain
Feeling More at Ease with It
All
August 7, 2013 – Second Week at The Casa Starts
August 8, 2013 – Spiritual Stitches Removed
August 9, 2013 – My Brother Meets Me at The Casa
August 10-12 - Weekend with Family
August 13 – Another Cat Enters My Life
August 14, 2013 – Third Week at The Casa
August 15, 2013 – Learning More About Spiritism
August 16, 2013 – Meaningful Encounters at The Casa
August 17, 2013 – More Happenings on a Non-Casa Day
August 18, 2013 – Day Visiting Friends
Unbelievable Encounter with a Clairvoyant and a Scary Night
August 20, 2013 – Around Abadiânia
August 21, 2013 – Finally Comfortable with It All
at the Casa
August 22, 2013 – Nice and Happy Day
August 23, 2013 – Last Day in Abadiânia
August 23, 2013 – Oh! I’m Leaving Abadiânia on Another 23!
August 24, 2013 – Another Plane Seatmate Connected to Gainesville
Back Home, It’s Not Easy at First
August 31, 2013 – Another Friend Diagnosed with Cancer
Continuing to Learn How to Heal the Spiritual Causes of Illness
September 4, 2013 – Insomnia and More Regressions
September 10, 2013 – Individually Guided Regression at Home
September 15-24, 2013 – Positive Shifts at Work
Five Months Journeying with the Dragon & Full Circle with The Original
Cat
Returning to Abadiˆania and the Casa
October 2, 2013 – I Feel at Home
October 3, 2013 – Back to the Casa, Feels Like Arriving Home
October 4, 2013 – Letting My Intuition Guide Me
October 5, 2013 – Meeting Casa Veterans and Going to Waterfall
October 6, 2013 – My Sister Andrea Arrives in Abadiânia
October 7, 2013 – Sister Time is Healing
October 8, 2013 – Another Peaceful Day
October 9, 2013 – Recognized
by Entity!
October 10, 2013 – Amazing Stories
October 11, 2013 – Last Day at The Casa
Back Home Again
Going Public to Potentially Help Others With LMS
October 20, 2013 – Time to Start Tests for 6-Month Checkup
October 22, 2013 – CT-Scan Day
October 23, 2013 - Yannick’s 18th Birthday
Celebrating 6 Months Dragon Free
October 24, 2013 – Tic-Tac, Tic-Tac…
October 25, 2013 – End Let the Party Begin
October 30, 2013 – Verbalizing the Importance of Guidance on How to be Positive
Embracing My Spiritual Growth
The Traveler Within & the Sinkholes
November 17, 2013 – Serendipity and The Aleph
November 23, 2013 – Discovering a Magical Little Place
Thanksgiving and Bruno’s 25
November 26, 2013 - Experiencing The Aleph?
November 27, 2013 – Preparing for an Early Christmas
November 29, 2013 - More Unusual Happenings I Don’t Even Try to Explain
November 30, 2013 – Unexpected and Surreal Response
December 1, 2013 – More!!!!
December 4, 2013 – Intrigued
December 19, 2013 – A Red Address Book!
December 20, 2013 – Hmm!
Finally Ready to Listen
and Respect My Deepest Desires
December 5, 2013 – A Special Picnic and Hike
December 6, 2013 – A Day of Great Surprises
December 13, 2013 – Thoughtful Gifts
December 16, 2013 – Awakening
And to Bali I Go Again
December 23, 2013 – A Day in Bangkok
December 24 to January 4, 2014 – Family Time in Bali
Feeding My Body and Soul in Bali
January 6, 2014: Living Ubud and The Alchemist
January 7, 2014: New Rhythm of Life
A Case of Coincidence, Channeling or Synchronicity?
January 9, 2014: Uneasiness Happens Even in Paradise
January 10, 2014 – Meaningful Ties are Created
January 11, 2014 – Another Balinese Day of Yoga, Connections, and Healing
January 12, 2014 – A Spiritual Day: Travelling to Temple with Tony
Focusing On Helping Children Heal
January 18, 2014 – Last Day in Bali
Back in the USA for 9-Month Checkup
January 22, 2014 – Test Day
January 23, 2014 - Unexpected Shift: The Dragon Awakens
January 27-28, 2014 - More Surreal News
January 30, 2014 - Another New Beginning: Treatment to Tame/Slay the Dragon
February 1-9, 2014 - What a Roller Coaster Ride!
Unexpected Outpouring Of Prayers And Support: How Can I Be So Blessed?
Chemo: Dive into the Unknown
My Birthday and My Biggest Gifts: Loved Ones and Fundraiser For LMS Research
February 18, 2014: Second Chemo Session
Wig Shopping & Donating My Hair
Learning to Receive and Shine
February 26, 2014: Enjoying the Week Off-Chemo
… And Cancer Takes Friends Away
Tolerating Treatment & Enjoying Life
March 4, 2014 - Second Round of Chemo Starts and I Am Still Holding On
March 5, 2014 – Spiritual Surgery at Home
A Gloomy Day and Losing My Hair
March 7, 2014 - There is Always Another Day, Potentially Brighter
March 8, 2014 - What a Mix of Emotions! What a Bumpy Journey!
March 9, 2014 – Glorious Sunday
Shaving My Head
March 11, 2014 - Chemo Without Hair But in High Spirits
Another Coincidence?
Seesaw of Emotions
March 15, 2014 - Friendship: Does The Dragon Give Just to Take Away?
Practicing Courage by Zip Lining
St. Patrick’s Day & Celebration
March 18, 2014 - Treatment is Working. YES!!!
March 22, 2014 – Possibility of a Meaningful Project Brings Joy
Comfortable Bald; I Am Who I Am
March 24, 2014 – Third Round of Chemo Starts
Loneliness Overtakes My Heart And Soul
March 25, 2014 – Now I Know: The Dragon Gives and The Dragon Takes Away
March 26, 2014 – Another Down Day
March 27, 2014 – My Sister Leaves and More Unexpected News
April Fool’s Day, A Year Since the Fibroid Grew, My Purple Wig & New Friendship
April 2, 2014 – More Teasing by The Dragon or The Universe?
Picnic, Mixed Emotions & Anemia
April 4, 2014 – Tea With an Old Friend and Down Again: Mixed Emotions
April 5, 2014 – Farmer’s Market and Great Chat
April 6, 2014 – I Hike Again, Despite Anemia. Yeah! I Trick The Dragon.
April 8, 2014 – Hey Dragon! You Can’t Catch Me…. Ha, Ha, Ha
Two Months on Chemotherapy
April 11, 2014 – Visit From My Nephew is Refreshing & Biopsy Results Upsetting
April 12, 2014 – Merging with Nature
April 13, 2014 – When Life Deprives Me of Color, I Go To The Indian Holi Color Fest to Get Colorful
Finally Understanding Synchronicity
April 15, 2014 - Forth Round of Chemo Starts
Burnout and Love: The Dragon Wears off People. The Journey Becomes Lonelier.
April 19, 2014 – As Some Doors Close, Others Open
April 20, 2014 – Easter
April 22, 2014 – Facing the Emotional Pain of a Loved One is Heartbreaking
April 23, 2014 – One Year Anniversary of My Journey with the Purple Dragon
Foreword
I met Patricia at meditation group. During a break, she was sipping tea and I was waiting to use restroom. We shared a smile and I spoke to myself out loud, something about the journalist in me. Her eyes widened.
You’re a writer? I am in search of a writer. Actually an editor.
And so our friendship began. Over a number of lunches and coffees, I realized Patricia didn’t need a writer so much as someone to help organize and edit her journals of healing from a rare form of cancer. With the help of typist extraordinaire Jessica Miller, we three pieced together a slice of Patricia’s life (from diagnosis to chemotherapy and one year anniversary) that is nothing less than extraordinary.
Whether or not you believe in the healing capabilities of gurus, entities, or past life regression, whether you’re a follower of Spiritism, Buddhism, Christianity, or any other practice, whether you are an agonist or an atheist, your belief system is irrelevant. Patricia’s story is one of survival, a search for hope, and a release of the past to embrace a fearless future.
I am so fortunate to have met Patricia and proud to call her my friend. She has reminded me every single day that we all have the power within ourselves to heal what ails us. We each need to believe in ourselves and in the truth that we seek out. That’s when we will truly be set free – when we find peace within.
- Jennifer Grant, April 23, 2014
Preface
The courage to make public my journey with The Dragon (Leiomyosarcoma), as recorded in a journal I kept since July 2013, did not come easily. My words were written to myself (my soul) and to the invisible audience around all (the invisible world and beings), as I came to realize later. But once Jennifer Grant insisted that they could help others going through their own journeys with cancer or other hardships, I surrendered to the fear of being judged for having taken unconventional detours along the conventional road of grieving and towards healing.
These are the words of MY own path. The places I went and the experiences I lived are the result of me finally listening to my own voice, my intuition, which went from being whispered softly in my ears to firmly screaming in my heart and soul. With difficulty at first, I tuned away from my conscious, rational, and analytical mind, and followed my gut instinct, my intuition, the feelings derived from the deepest perception of my soul and the Universe.
On my path, there were just too many "weird coincidences" to be ignored, making it easier for me to just dive in and go explore the unknown, without rationalizing my decisions. I soon learned that there are no coincidences in life; I learned that I seem to have a distinctive perception of what is around me, at times hearing with more than my ears, and seeing with more than my eyes; I appear to connect with the energy around, "scanning" what surrounds me with great curiosity, perhaps perceiving just a little more than most would, although everyone has this innate ability. The end result of increased awareness is more synchronicity
and channeling,
which lead to what we call coincidences.
I now accept the premonition dreams I have had, the odd
encounters throughout the small villages of remote areas of the world, and my guessing
as part of who my true self really is; I am now okay with my own being, without need to whisper my truth in my sister’s ears while asking for secrecy. No embarrassment. No fear of being poorly judged or ridiculed. I accept my own truth and finally can embrace it as part of who I truly am as a spiritual being having a human experience. I know now that my body, mind, and soul coexist, but they are not the same.
Yes, I have a diagnosis of a voracious cancer, the dragon called Leiomyosarcoma (LMS), but this fact does not define me as a person. This is a medical condition my physical body has, but it cannot sicken my spirit. I am who I am as a person, as a soul. I am my actions, my smiles, my tears, my feelings, and my true being.
I hope that sharing my steps towards healing, from fear to peace, from tears to smiles, from feeling stuck to moving forward with The Dragon, enlightens you, even if in a small way.
With desire of health and peace within all,
Patricia
P.S. Please take into consideration that I am not a professional writer; I am just a woman, a mother, a dietitian, and a human being diagnosed with cancer, sharing her thoughts and feelings while on her healing path.
A human being is a part of the whole that we call the universe, a part limited in time and space. He experiences himself, his thoughts and feelings, as something separated from the rest – a kind of optical illusion of his consciousness. This illusion is a prison for us, restricting us to our personal desires and to affection for only the few people nearest us. Our task must be to free ourselves from this prison by embrace of all living being and all of natures.
— Albert Einstein
(This powerful quote was written on a painting hung on the wall by the table I sat at a café, before heading to the airport in Orlando, to fly to Abadiânia, Brazil, on July 28, 2013. It touched me then, and its meaning has stayed with me.)
177115674.jpgDon’t be intimidated by other people’s opinions. Only mediocrity is sure of itself, so take risks and do what you really want to do.
— Paulo Coelho, Aleph
July 29, 2013 - Flying From Home To Abadiˆania, Brazil
I had never heard of Abadiânia until a couple of weeks ago. I don’t know anyone there, and I’m not sure what exactly I will do there, or what will happen. But I am going, flowing with the cascade of events that started… When exactly did it all start? Two weeks ago? Three months ago? A year, twenty-five years, or maybe an eternity ago? I truly don’t know.
The coincidences or happenings that have led me to be seated on this plane, flying to encounter the unknown, have kept me swirling, both physically and emotionally, during the past fourteen months, and especially during the last three. My beliefs have been shaken, and I have chosen to allow myself to embark on a journey through territories somewhat out of my comfort zone.
Where should I start telling this tale? To make some sense, I hope, I will start with the most pertinent and recent events.
177115674.jpgNever ignore warning signals in your body, even the smallest ones. It doesn’t matter the experience of others if your intuition whispers that something isn’t as it should be.
— Patricia Moreira-Cali
The Catalyst: An Unexpected Diagnosis
November 2012 – The Routine Checkup
I usually have my annual gynecologic exam in August. But in 2012, I didn’t see my doctor until November. As usual, my mammogram was normal. I reported that my migraines and insomnia were managed with treatment, and all else seemed fine. The doctor proceeded to do a PAP smear. With the exam complete, I