Migraine and Me: A Doctor's Experience of Understanding and Coping with Migraine
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About this ebook
In writing this book, retired doctor Jennifer Barraclough has drawn on her personal journey with the migraines which began in her teenage years and persisted until later life. "Migraine and Me" is a concise practical guide intended for migraineurs themselves and for their families, colleagues, and friends.
Interweaving her own personal story and those of other contributors with evidence from published research, Jennifer addresses migraine from a holistic perspective. Besides summarizing current medical knowledge about causes and management, she considers psychological, social and spiritual aspects, including some controversial topics such as the concept of a "migraine personality" and the reasons for stigma.
Alongside the use of prescribed drugs for preventing and treating attacks, the potential for self-help through lifestyle changes and natural therapies is highlighted. The relationship between migraine and creativity is examined, and some possible "silver linings" are proposed.
"Migraine and Me" offers empathy, practical insights, and hope for anyone affected by this complex neurological condition once described in a drug advertisment as "like hell on earth".
Approximate length 20,300 words
Jennifer Barraclough
Jennifer Barraclough was born and brought up in England, and practised as a medical doctor there for many years before moving to New Zealand with her husband. She has published both fiction and non-fiction books. Besides writing, her interests include animal welfare, choral singing and holistic health care.
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Migraine and Me - Jennifer Barraclough
Other books by Jennifer Barraclough
––––––––
NON-FICTION
Wellbeing for Writers
Beautiful Vibrations: living through medical illness with Bach Flower remedies
Persons not Diseases
Focus on Healing
Enhancing Cancer Care (edited)
Cancer and Emotion
Across a Sea of Troubles
Geoffrey Guy’s War (edited, with David Guy)
Hughes Outline of Modern Psychiatry (later editions by David Gill)
NOVELS
Cardamine: a New Zealand mystery
You Yet Shall Die: a psychological mystery about family secrets and a long-ago crime
Three Novellas: Carmen’s Roses, Blue Moon for Bombers, The Windflower Vibration
Overdose
Fatal Feverfew
Unfaithful unto Death
INTRODUCTION
I am a retired doctor who had frequent migraine attacks between the ages of 15 and 70. Migraine and Me is based partly on the personal experience of myself and other contributors, and partly on evidence from published research. It aims to give a broad overview of migraine, including the psychological and social aspects as well as the medical ones. I hope it will be helpful to other migraineurs and their partners, families, work colleagues and friends.
A note on terminology. The word migraineurs
may seem rather pretentious, and some people dislike it because they feel it defines them by their disease, but I have chosen to use it here because it is more concise than people with migraine
. For the same reason I prefer the old term common migraine
to the official one migraine without aura.
Where possible I have avoided disempowering words such as patients
, sufferers
, and victims
. I have also avoided using war-like language such as fighting a battle with migraine
which could ramp up an unhelpful stress response. Migraine attack
sounds rather militant too, but there is no good alternative.
Migraine is a complex disorder, and a short book like this cannot cover the whole field in any depth. For readers wanting more detail, there are many academic papers free to access online, and websites providing regular updates and review articles, for example:
https://www.migraine.com
https://www.migrainedisorders.org
https://www.migrainetrust.org
https://www.migraineagain.com
Disclaimer
The information in this book is not intended to replace professional healthcare advice for individual cases. The medical content is accurate to the best of my knowledge but, having been retired from my medical career for many years, I cannot claim to write with the authority of a practicing doctor.
Acknowledgements
Besides drawing on my own experience, this book includes stories and comments from other people, mainly anonymous. I thank them all for their contributions.
1. MY MIGRAINE STORY
To set the scene I will describe my own experience of living with migraine. While some aspects of my story are unique to me, others illustrate typical features of the condition.
Growing up in post-war England, I was a reasonably healthy child apart from being a poor sleeper, having bad travel sickness and a tendency to constipation, all symptoms known to be associated with migraine. I started having headaches in my mid-teens. They were attributed to eye strain due to studying for exams and I was prescribed reading glasses, which did not help. Looking back I think the main reason was that when I got home from school in the afternoons I usually ate a big lump of cheddar cheese. Maybe psychological factors contributed too, though these were never discussed. Life had certainly become overly serious and lacking in joy, with mounting academic pressures and an unhappy atmosphere at home. Over the next ten years or so, I experienced occasional headaches accompanied by nausea. If they had happened more often at that stage I would probably have been unable to cope with the demands of going through medical school and the subsequent rigours of junior hospital doctor posts.
From my mid-20s the attacks became more frequent and severe. During those years I was working in a series of jobs that often involved disturbed nights, had a complicated love life, and was drinking a fair amount of alcohol. The attacks settled into a fairly consistent pattern. They usually started around midday with a pain behind my nose, and over the next few hours spread to involve my whole head. As the afternoon progressed the throbbing pain would become increasingly worse and was accompanied by nausea eventually leading to repeated and uncontrollable vomiting, very awkward if it happened away from home. By this stage I was barely capable of functioning, and unable to keep down any food or drink. The symptoms would gradually subside by midnight and if possible I would go to bed with a sedative, waking next morning feeling much improved but very weak. At that time I had little awareness of trigger factors, other than the cigarette smoke to which I was exposed while working at a psychiatric hospital. Later I came to realise that some combination of dietary indiscretion, lack of sleep, travel, or emotional stress often contributed.
My life became overshadowed by dread of the next attack, though it was some comfort to know that it was not likely to strike for at least a week after the last one. It seemed that there needed to be an interval, a sort of refractory period, in between. Rightly or wrongly I put this down to the gradual build-up of toxic substances in my body, probably due to incomplete metabolism of certain foods.
I don’t recall taking any time off work because of migraine attacks, though perhaps it would have been sensible to do so. This was partly because I felt a duty to soldier on until my symptoms became unbearable, which seldom happened until the evening. And I felt ashamed and embarrassed about them. I think this was partly due to unconscious beliefs that sickness was a weakness and, in keeping with the macho medical culture of that time, that doctors exist in a different category from patients and do not get ill. Another factor was that I was becoming aware of the stigma surrounding the condition. If I told someone that I was having a migraine attack, their response did not always seem understanding or sympathetic. I sensed that they either dismissed it as trivial, or assumed it was my own fault. It was many years before I first consulted a GP about my headaches, but eventually I became more willing to admit to the problem and to seek help,