#100 - The 100th Podcast!

FromDown Syndrome Center Podcast

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#100 - The 100th Podcast!

FromDown Syndrome Center Podcast

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Length:

11 minutes

Released:

Apr 28, 2021

Format:

Podcast episode

Description

Join us as we remember the history of this podcast and hear beautiful music and testimonials shared by our listeners. And take a listen to this song by Troy Griffith. Troy Griffith "Ten by Twelve" Music Video https://youtu.be/vNA4X9d7yT8

Released:

Apr 28, 2021

Format:

Podcast episode

Titles in the series (99)

This podcast contains information for caregivers and providers regarding Down syndrome. Hosted by Dr. Kishore Vellody, Medical Director of the Down Syndrome Center of Western Pennsylvania and former President of the National Down Syndrome Congress.

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#83 - A Friend Like Anian (with Meeka Caldwell): In a continuation of our discussions on Race and Down Syndrome, author Meeka Caldwell joined the podcast today to talk about her experiences as a mother and her children's book "A Friend Like Anian." Amazon Link If you would like an... by Down Syndrome Center Podcast
18 min listen
#86 - Learning to Read - Tips & Resources for Success (with Dana Halle).: Today, we were joined by Dana Halle, Co-Founder/Executive Director of the Down Syndrome Foundation of Orange County and Developer and Lead Instructor of The Learning Program and LP Online. We discussed tips and resources for ultimate... by Down Syndrome Center Podcast
18 min listen
#108 - Pain Perception and Expression in Down Syndrome (with Dr. Meredith Wright Whittaker): Dr. Meredith Wright Whittaker, PhD, joined the podcast today to share her personal experiences and literature review on pain perception and expression in people with Down syndrome. For more information, please see the article discussed: by Down Syndrome Center Podcast
25 min listen
#99 - Education in Ds - Past, Present, and Future (with Ricki Sabia, JD): Dr. Vellody was joined by NDSC Senior Education Policy Advisor Ricki Sabia to discuss topics surrounding Education in people with Down syndrome. Ricki shared her extensive expertise in this area as well as her personal experiences as a mother... by Down Syndrome Center Podcast
42 min listen
#89 - COVID Town Hall (hosted by DSA Pittsburgh): The Down Syndrome Association of Pittsburgh hosted a virtual town hall to discuss questions related to COVID and Down Syndrome. Dr. Vellody, Dr. Nowalk, and Dr. Freeman were all present to answer questions live. by Down Syndrome Center Podcast
67 min listen
#106 - COVID and Mental Health in Ds (with Dr. Ruth Brown): Dr. Ruth Brown, psychologist from Virginia Commonwealth University, joined the podcast to discuss preliminary data from her study on the psychological impact of the COVID pandemic in people with Ds. If you would like to add to this data set,... by Down Syndrome Center Podcast
19 min listen
#91 - Medical History of Down Syndrome (with Dr. Kristen Ehrenberger, MD, PhD): Dr. Kristen Ehrenberger, MD, PhD joins us on the podcast today to discuss the medical history of Down syndrome. Dr. Ehrenberger is dually boarded in Internal Medicine and Pediatrics, and she also has a degree in Medical History. by Down Syndrome Center Podcast
21 min listen
#101 - 2021 NDSC Convention (with Sarah Hill): Dr. Vellody is joined by Sarah Hill who is the Convention Director for the National Down Syndrome Congress. The 2021 NDSC Convention is a one-of-a-kind opportunity for families and self-advocates to get information on Down syndrome. This... by Down Syndrome Center Podcast
18 min listen
#85 - Does having Ds lead to higher risk in COVID? (COVID and DS#7, with Dr. Andrew Nowalk) by Down Syndrome Center Podcast
21 min listen
#84 - Toilet Training in Down Syndrome (with Dr. Lina Patel, PsyD): Dr. Lina Patel, psychologist from the Sie Center at Children's Colorado, joined Dr. Vellody on the podcast to talk about toilet training. Dr. Patel is the co-author of the recent book Potty Time for Kids with Down Syndrome: Lose the Diapers, Not... by Down Syndrome Center Podcast
30 min listen
#92 - COVID-19 Vaccine in People with Down Syndrome: Dr. Andrew Nowalk from Pediatric Infectious Diseases joined the podcast today for an update on COVID-19 infections in Down syndrome. We discussed the COVID-19 vaccine in general and also specifically in people with Down syndrome. Down Syndrome... by Down Syndrome Center Podcast
30 min listen
#103 - COVID Vaccination in Children with Ds (with Dr. Andrew Nowalk): In our ongoing goal to keep you up-to-date with the latest changes in the COVID-19 pandemic, Dr. Nowalk joined the podcast again today to discuss COVID vaccination in children with Down syndrome down to 12 years old. Dr. Nowalk also addressed... by Down Syndrome Center Podcast
19 min listen
#130 - The NEW 2022 Health Supervision Guidelines for Children and Adolescents with Down Syndrome (with Dr. Marilyn Bull): Dr. Marilyn Bull, lead author of the 2022 American Academy of Pediatrics Health Supervision Guidelines for Children and Adolescents with Down Syndrome, joins the podcast today to discuss the latest guideline update released earlier this week!... by Down Syndrome Center Podcast
34 min listen
#95 - Feeding in Infants with Down Syndrome: Dr. Vellody was joined by specialists from the Children's Hospital of Pittsburgh Feeding Team to discuss techniques to effectively feed infants with Down syndrome. Many thanks to our guests on the podcast: Uzma Faisal (Lactation) Jamie Scheller... by Down Syndrome Center Podcast
29 min listen
#97 - COVID and DS - Variants, Vaccines, and a New Study in Ds (with Dr. Andrew Nowalk): Dr. Andrew Nowalk, pediatric infectious diseases specialist at the Children's Hospital of Pittsburgh, joins Dr. Vellody to talk about current topics of variants, vaccines, and a new study in Down syndrome from the T21-RS group. by Down Syndrome Center Podcast
29 min listen
#123 - Education in Down Syndrome: Dr. Vellody was joined by Sue Buckley on the podcast to discuss education in Down syndrome, specifically discussing speech, reading, and math skills. Sue Buckley is a leading expert in education and development for young people with Down... by Down Syndrome Center Podcast
28 min listen
#87 - Down Syndrome Clinic to You - DSC2U (with Dr. Brian Skotko): Dr. Brian Skotko joined us again as a guest one the podcast to discuss Down Syndrome Clinic to You (DSC2U), a new and innovative way to get personalized healthcare recommendations for your loved one with Down syndrome. Down Syndrome Clinic to You... by Down Syndrome Center Podcast
15 min listen
#100 - The 100th Podcast!: Join us as we remember the history of this podcast and hear beautiful music and testimonials shared by our listeners. And take a listen to this song by Troy Griffith. Troy Griffith "Ten by Twelve" Music Video by Down Syndrome Center Podcast
11 min listen
#88 - Hot off the Presses! Adult Healthcare Guidelines (with Dr. Peter Bulova): Dr. Peter Bulova, Director of the Adult Clinic at the Down Syndrome Center of Western Pennsylvania, joins us on the podcast to talk about the recently released Adult Down Syndrome Healthcare Guidelines. by Down Syndrome Center Podcast
21 min listen
#110 - COVID and Return to School 2021 (with Dr. Andrew Nowalk): Dr. Nowalk joined the podcast to discuss return to school for 2021 and ways that it looks different than even last year. by Down Syndrome Center Podcast
24 min listen
#147 - Forget Me Not - A Powerful Documentary on Inclusive Education: Award winning Director, Olivier Bernier joined the podcast today to talk about his recently released documentary called Forget Me Not. Part American, part Quebecois, Olivier is also the Co-Founder and Creative Director of the production company,... by Down Syndrome Center Podcast
19 min listen
#94 - Skin Conditions in Down Syndrome, Part 1 (with Dr. Jillian Rork) by Down Syndrome Center Podcast
35 min listen
#93 - Infantile Spasms (with Dr. Nicole Baumer): Dr. Nicole Baumer joined the podcast again today, this time to discuss a type of seizure called infantile spams that are seen more commonly in people with Down syndrome. For more information and helpful videos, see: Epilepsy Foundation Dr.... by Down Syndrome Center Podcast
19 min listen
#105 - Hearts of Joy International: Dr. Vellody was joined by Lauren Costabile, founder of Hearts of Joy International. Listen and learn about the work that this amazing organization is doing to bring hope to children with Down syndrome with congenital heart defects. by Down Syndrome Center Podcast
19 min listen
#96 - Skin Conditions in Down Syndrome, Part 2 (with Dr. Jillian Rork): Dr. Jillian Rork joins the podcast again today as a board certified pediatric dermatologist to discuss skin conditions in Down syndrome. This is Part 2 of a video podcast series on this topic. Topics in today's episode include: Seborrheic... by Down Syndrome Center Podcast
39 min listen
#115 - Approach to Selective ("Picky") Eaters: Selective (or "Picky") eaters are common in Pediatrics. Many parents receive advice on how to manage but what does the data show? Ann Meyers from Clinical Nutrition and Sarah Rossman from Occupational Therapy joined the podcast today to... by Down Syndrome Center Podcast
26 min listen
#116 - Unexplained Regression in Down Syndrome: Dr. Stephanie Santoro with the Mass General Down Syndrome Program joined the podcast to discuss a relatively newly recognized condition called by several names including Unexplained Regression in Down Syndrome (URDS), Down Syndrome Disintegrative... by Down Syndrome Center Podcast
15 min listen
#102 - Orthodontic Care (with Dr. Lindsay Schuster): Listen as Dr. Vellody answers yet another listener question, this time discussing orthodontic care with Dr. Lindsay Schuster. by Down Syndrome Center Podcast
22 min listen
#90 - Financial Planning Advice and Resources (with Rob Wrubel): Listen in as Rob Wrubel shares personal and professional advice on financial planning on today's podcast. You can find more information and resources from Rob at his website at . by Down Syndrome Center Podcast
17 min listen
#128 - Power of Attorney and Guardianship: Dr. Andrew McCormick, Director of the Transition Program at the Down Syndrome Center, joined the podcast to discuss the difference between power of attorney and guardianship. If there are any topics you would like us to discuss on the podcast,... by Down Syndrome Center Podcast
19 min listen

More Episodes from Down Syndrome Center Podcast

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#182 - Anesthesia in Down Syndrome, Part 2: Dr. James Hunt is a pediatric anesthesiologist at Arkansas Children's Hospital. He joined the podcast to discuss specific issues related to anesthesia in Down syndrome. This is Part 2 of the podcast. by Down Syndrome Center Podcast
31 min listen
#181 - Anesthesia in Down syndrome, Part 1: Dr. James Hunt is a pediatric anesthesiologist at Arkansas Children's Hospital. He joined the podcast to discuss specific issues related to anesthesia in Down syndrome. This is Part 1 of the podcast. by Down Syndrome Center Podcast
28 min listen
#180 - Sleep Questions!: Dr. Lucy Lubinski is a Sleep Psychologist at Children's Hospital of Pittsburgh. She joined the podcast today to discuss common sleep related issues in pediatrics and approaches to management. Pediatric Sleep Council If you would like to suggest... by Down Syndrome Center Podcast
22 min listen
#179 - Exceptional Families of the Military: Rebecca Emerson and Austin Carrigg joined the podcast to talk about Exceptional Families of the Military, a 501 c(3) non-profit that helps families who are enrolled in the Department of Defense Exceptional Family Member Program. They discussed... by Down Syndrome Center Podcast
25 min listen
#178 - John's Crazy Socks!: John and Mark Cronin joined the podcast today to talk about their world famous sock store called John's Crazy Socks. Listen to the podcast to find out why their mission is about something so much greater than "just socks." For more... by Down Syndrome Center Podcast
29 min listen
#177 - Weight Loss Medications and Surgeries: Dr. Vibha Singhal, pediatric endocrinologist, and Dr. Kellen Hayes, bariatric surgeon, joined the podcast to give their thoughts on the latest buzz around weight loss medications and bariatric surgeries. They also give their thoughts... by Down Syndrome Center Podcast
29 min listen
#176 - Happy World Down Syndrome Day 2024!: NDSC Board Member and Self-Advocate Craig Blackburn joined the podcast to share about the amazing work that he is doing. He and his mother Pat Ehrle shared about their experiences and what World Down Syndrome Day means to them. by Down Syndrome Center Podcast
27 min listen
#175 - Inflammation in Down Syndrome (with Dr. Joaquin Espinosa): Dr. Joaquin Espinosa is the Executive Director of the Linda Crnic Institute for Down Syndrome at the University of Colorado. He joins the podcast today to discuss his research on inflammation in Down syndrome and how modifications in the immune... by Down Syndrome Center Podcast
29 min listen
#174 - Dating in Down Syndrome (with Terri Couwenhoven): Terri Couwenhoven is known internationally for her work as a sex educator specializing in creating programs and resources for people who have intellectual disabilities, their famlies, and the professionals who support them. She rejoined the... by Down Syndrome Center Podcast
25 min listen
#173 - Sexuality and Down Syndrome (with Terri Couwenhoven): Terri Couwenhoven is known internationally for her work as a sex educator specializing in creating programs and resources for people who have intellectual disabilities, their famlies, and the professionals who support them. She has been on the... by Down Syndrome Center Podcast
31 min listen
#172 - Hearing Health in Down Syndrome (with Dr. Heather Porter): Dr. Heather Porter from Boys Town Research Hospital joined the podcast to discuss hearing health in Down syndrome. This is part 2 of the 2 part podcast. If you would like to suggest a topic for us to cover on the podcast, please send an... by Down Syndrome Center Podcast
23 min listen
#171 - Hearing Health in Down Syndrome (with Dr. Heather Porter): Dr. Heather Porter from Boys Town Research Hospital joined the podcast to discuss hearing health in Down syndrome. This is part 1 of a 2 part series. If you would like to suggest a topic for us to cover on the podcast, please send an... by Down Syndrome Center Podcast
17 min listen
#170 - Dementia in Down Syndrome, Part 2 (with Dr. Seth Keller): Dr. Seth Keller concludes our discussion on dementia in Down syndrome with part 2 of this podcast. If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like to partner with the Down Syndrome... by Down Syndrome Center Podcast
22 min listen
#169 - Dementia in Down Syndrome, Part 1 (with Dr. Seth Keller): Dr. Seth Keller joined the podcast to share his insights into dementia and Down syndrome. This is part 1 of a 2 part podcast. If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like... by Down Syndrome Center Podcast
23 min listen
#168 - Year End Update!: Listen as Dr. Vellody reflects on the history of this podcast, the history of the Down Syndrome Center, and looks towards the future for both! To learn more about the Down Syndrome Center, you can visit . If you would like to suggest... by Down Syndrome Center Podcast
14 min listen
#167 - Talk Tools (with Heather Vukelich): Speech language pathologist Heather Vukelich joined the podcast today to inform us about TalkTools and techniques to address feeding and speech clarity in people with Down syndrome. Websites/Resources If you... by Down Syndrome Center Podcast
31 min listen
#166 - Gigi's Playhouse (with Nanci Gianni): Nancy Gianni, Founder and Chief Belief Officer of Gigi's Playhouse, joined the podcast as part of our "Meet The Nationals" series. Gigi's Playhouse provides free educational, therapeutic-based, and career development programs for individuals... by Down Syndrome Center Podcast
28 min listen
#165 - Friendship Circle (with Rabbi Mordy Rudolph): Rabbi Mordy Rudolph joined the podcast to discuss the Friendship Circle of Pittsburgh. This amazing organization was established in 2006 with the intention of creating a more inclusive community. It is a community-based program that... by Down Syndrome Center Podcast
24 min listen
#164 - Black Down Syndrome Association: Kelli Caughman and Crystal Lotterberry, founders of the Black Down Syndrome Association joined the podcast today to share their stories and how they led to the creation of this fantastic organization. For more information, go to . Co Founders... by Down Syndrome Center Podcast
42 min listen
#163 - Aging in Down Syndrome (Life Expectancy, Early Aging, Menopause): Dr. Brian Chicoine and Dr. Hannah Graham from the Adult Down Syndrome Center with Advocate Health Care in Park Ridge, Illinois joined the podcast today to discuss a listener question on menopause in Down syndrome. While I had these experts on... by Down Syndrome Center Podcast
25 min listen
#162 - Is Homeschooling An Option for Children with Ds? (with LaTaasha Byrd): LaTaasha Byrd joined the podcast today to answer listener questions about homeschooling. Is homeschooling a legitimate option for children with Down syndrome. If so, what are some important considerations that may be unique in this... by Down Syndrome Center Podcast
37 min listen
#161 - Special Olympics: Gary Cimaglia, Special Olympics North America’s Vice President of Sports, joined the podcast today to give a broad overview of the Special Olympics and how you and your loved ones can be involved. For more information, go to . If you... by Down Syndrome Center Podcast
26 min listen
#160 - Down Syndrome Regression Disorder (with Dr. Jon Santoro): Down Syndrome Regression Disorder (formerly called Unexplained Regression in Down Syndrome or Down Syndrome Disintegrative Disorder) is a diagnosis that has previously been missed or misdiagnosed in people with Down syndrome. It is a topic in... by Down Syndrome Center Podcast
25 min listen
#159 - Sensory Processing - Part 2 (Sound sensitivity, toothbrushing, haircuts, nail trims): Dr. Katie Frank from the Adult Down Syndrome Center in Park Ridge, IL joined the podcast to answer listener questions regarding sound sensitivity, toothbrushing, haircuts, and nail trims. So many people with Down syndrome have sensory... by Down Syndrome Center Podcast
18 min listen
#158 - Update on COVID (wit Dr. Andy Nowalk): The official pandemic status may be gone, but COVID still lingers. Listen as Dr. Andy Nowalk shares with us the latest updates on COVID, including the upcoming COVID vaccine boosters. by Down Syndrome Center Podcast
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#157 - Understanding Grief and Grieving in People with Down Syndrome: How do we help people with Down syndrome during times of grief and grieving? Dr. Rose Reif, LCMHC, CRC, BC-TMH and owner of Reif Counseling Services, PLLC joined the podcast today to discuss her perspective. For more information on Dr. Reif,... by Down Syndrome Center Podcast
19 min listen
#156 - Behavioral Analysis (with Dr. Stacy Taylor): Dr. Stacy Taylor, with Advance Behavior and Analysis, is an expert in behavioral analysis and special interest in patients with Down syndrome, joined the podcast to discuss her approach to behavioral questions that we received from you! We... by Down Syndrome Center Podcast
33 min listen
#155 - Down Syndrome Affiliates in Action: As part of our Meet the Nationals series, Sarah Mulligan, Executive Director of Down Syndrome Affiliates in Action joined the podcast to talk about the great work that this organization does with local affiliates all over the country. For more... by Down Syndrome Center Podcast
23 min listen
#154 - Bitty and Beau's Coffee Shop: Ben Wright, co-creator of Bitty and Beau's Coffee along with his wife Amy Wright, joined the podcast today to discuss the motivation behind these amazing coffee shops! There will be a Bitty and Beau's Coffee Shop opening in Pittsburgh soon so we... by Down Syndrome Center Podcast
32 min listen
#153 - Improving Tolerance to Device Wearing (hearing aids, glasses, CPAP masks): Dr. Lina Patel from the Sie Center in Denver joined the podcast again today. Given that facial sensitivites are very common in people with Down syndrome, tolerance to wearing hearing aids, glasses, CPAP masks, etc. can be a challenge. Dr.... by Down Syndrome Center Podcast
25 min listen

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#100 - The 100th Podcast!

#100 - The 100th Podcast!

Description

Titles in the series (99)

More Episodes from Down Syndrome Center Podcast