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How do we maintain hope? (Part 1)

How do we maintain hope? (Part 1)

FromTalk Fragile X


How do we maintain hope? (Part 1)

FromTalk Fragile X

ratings:
Length:
25 minutes
Released:
Aug 10, 2022
Format:
Podcast episode

Description

Maintaining hope in our lives is a daily journey. Whether you're a parent of someone with Fragile X, self-advocate or full-mutation carrier. Often times the amount of hope we have is dependent on how our day is going, how our children are behaving, or discouragement in general. Not to mention our hope in having better treatments for our children affected by Fragile X, or even a cure! On this week's episode of Talk FX, I share from a raw and personal perspective of my own journey of maintaining hope and how it's been going lately. I also share what I've learned from other Fragile X families and experts that has really carried me through the difficult times. Tune in and share! 
Released:
Aug 10, 2022
Format:
Podcast episode

Titles in the series (67)

Talk Fragile X Podcast exists to provide a platform for families and Fragile X experts to share their knowledge, resources, and experiences, all in the hopes of creating more awareness, advocacy, and support of Fragile X Syndrome! Even if you don’t know what Fragile X Syndrome is, this Podcast is for you! I want everyone to know what Fragile X is and understand it’s genetic prevalence in individuals lives.