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49: The Story of Anna

49: The Story of Anna

FromThe Rare Life


49: The Story of Anna

FromThe Rare Life

ratings:
Length:
42 minutes
Released:
May 27, 2021
Format:
Podcast episode

Description

Have you ever felt inadequate to mother your child because of their diagnosis? In this episode, Katherine shares what it was like to find out her daughter Anna had achondroplasia—the most common form of dwarfism—during a 32-week ultrasound. As she researched the condition and faced the stigma she would help her daughter navigate throughout her life, she felt Anna would be better off adopted by adults with achondroplasia. Anna’s birth was just what she needed to out of that headspace. She found healing in just loving and snuggling her daughter and found her voice in advocating for her medical care. It was then that she discovered her competence in her role as Anna’s mom.
Links:
Check out our sponsor BetterHelp counseling and get 10% off here.
Listen to Emily Young’s episodes about her daughter Nora with achondroplasia here and here.
See photos of Katherine and her family on the website here.
Released:
May 27, 2021
Format:
Podcast episode

Titles in the series (100)

This is the real, raw, and all the feels of loving a child with disabilities. Episodes feature parent-guests, professionals, and solo episodes with host Madeline Cheney. Their authentic conversations don’t shy away from the strong and mixed emotions that often accompany medically-complex parenting. Parents listen in to feel seen, validated, and receive much-needed solidarity. Professionals working with disabled people listen in to better understand what is often going on under the surface for a family living with disabilities.