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97: Melissa Schlemmer’s Story | A Rare Disorder Affecting the Brain + Radical Acceptance

97: Melissa Schlemmer’s Story | A Rare Disorder Affecting the Brain + Radical Acceptance

FromThe Rare Life


97: Melissa Schlemmer’s Story | A Rare Disorder Affecting the Brain + Radical Acceptance

FromThe Rare Life

ratings:
Length:
42 minutes
Released:
Sep 1, 2022
Format:
Podcast episode

Description

When Melissa knew something was up with her infant-son Christopher nine years ago, she reassured herself that as long as his brain was ok, they would be ok.
So, when his neurologist told her about his rare disorder and the way it affected his brain, everything crumbled around them. After years of navigating all the sub diagnoses that come along with his syndrome, Melissa has come to a place of radical acceptance of her son’s disabilities.
In this episode, Melissa shares this and more.
Links:
Check out NAPA Center and their resources.
Get info about NAPA Center’s new Chicago Clinic.
Fill out an interest form for NAPA Center's new Chicago clinic.
Listen to Ep. 77: To Those Who Cannot Say, “I Wouldn’t Have Them Any Other Way”
Follow Melissa on Instagram
Follow Melissa on Facebook
Follow me on Instagram.
Follow the Facebook page.
Join the Facebook group Parents of Children with Rare Conditions.
Donate to the podcast via Buy Me a Coffee.
Check out our appointment day merch.
Check out our affiliate BetterHelp for online licensed therapy.
Access the transcript on the website here.
Released:
Sep 1, 2022
Format:
Podcast episode

Titles in the series (100)

This is the real, raw, and all the feels of loving a child with disabilities. Episodes feature parent-guests, professionals, and solo episodes with host Madeline Cheney. Their authentic conversations don’t shy away from the strong and mixed emotions that often accompany medically-complex parenting. Parents listen in to feel seen, validated, and receive much-needed solidarity. Professionals working with disabled people listen in to better understand what is often going on under the surface for a family living with disabilities.