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    Put your mask on first. - Episode 16 of #Syngap10 - June 25, 2021

    Put your mask on first. - Episode 16 of #Syngap10 - June 25, 2021

    FromSynGAP10 weekly 10 minute updates on SYNGAP1

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    Put your mask on first. - Episode 16 of #Syngap10 - June 25, 2021

    FromSynGAP10 weekly 10 minute updates on SYNGAP1

    ratings:
    Length:
    10 minutes
    Released:
    Jun 25, 2021
    Format:
    Podcast episode

    Description

    #SYNGAP10 - Episode 16 - 25 June 2021
    REMINDER - Put your own mask on first.
    THANKS - #syngapLOVE photos were great, check out our header image
    THANKS - DISORDER Channel - Thank you for Dad’s mention. https://www.facebook.com/rarediseasefilmfestival/videos/924558798278718
    GIVE - https://Syngap.Fund/CTR - We need to raise some money folks!
    WORK - Fundraisers are getting real, need to organize some events, email Peter@syngapresearchfund.org
    PROGRESS - Ciitizens got gift cards!  Yeah, sign up now.  Ciitizen.com/SYNGAP1
    STORY - ICD-10 Story of two codes: F78.A1 is our one and only code. https://syngap.fund/icd10
    Released:
    Jun 25, 2021
    Format:
    Podcast episode

    Titles in the series (100)

    Over 900 families are caring for a loved one with the rare disease ”SynGAP” resulting from a variant of the SYNGAP1 gene. This 10 minute weekly podcast is for them. A quick summary of the latest news in the space. The host is Mike Graglia, co-founder & managing director of the SynGAP Research Fund. SRF is a parent-led, all volunteer public charity in the US that strives to accelerate research into treatments for SYNGAP1 so that we can help our loved ones in a timeframe that matters. Learn more at https://www.syngapresearchfund.org/