10 min listen
Webinars, Mugs, Blog, GCs, Ciitizen, Cure, OUAG, CTR
Webinars, Mugs, Blog, GCs, Ciitizen, Cure, OUAG, CTR
ratings:
Length:
14 minutes
Released:
Aug 13, 2021
Format:
Podcast episode
Description
Episode 22 of #Syngap10 - August 13th, 2021
- Webinars
-https://Syngap.fund/eduardo August 19 at 10 am PST
-https://Syngap.fund/ana Sept 2 at 10 am PST
- Mugs mugs mugs
-https://twitter.com/AAledo/status/1426207246149636099
- Blog: Genetics article is a must read for new families
- https://www.syngapresearchfund.org/post/what-should-i-ask-in-my-genetics-appointment-for-syngap1
- Genetic Counselors
- Tell me about your experience
- What do they need to know?
- Hug them
- Ciitizen
- Count 110 + 12, let's keep going, 28 spots left!
- Panel https://www.facebook.com/cureSYNGAP1/videos/221755526409431/
- Sign up https://ciitizen.com/syngap1
- Cure
- Rarebase article https://www.rarebase.org/post/what-does-it-mean-to-find-a-cure-for-a-disease
- See episode 19. Yes, we need to reach for this
- We may not know what is coming, but we need to work for it
- One Upon a Gene
- 94 https://effieparks.com/podcast/episode-094-mike-and-nasha
- 41 https://effieparks.com/podcast/episode-41-syngap-research-fund
- Cures go through clinical trials. Get ready: https://syngap.fund/ctr - $36k!
- Webinars
-https://Syngap.fund/eduardo August 19 at 10 am PST
-https://Syngap.fund/ana Sept 2 at 10 am PST
- Mugs mugs mugs
-https://twitter.com/AAledo/status/1426207246149636099
- Blog: Genetics article is a must read for new families
- https://www.syngapresearchfund.org/post/what-should-i-ask-in-my-genetics-appointment-for-syngap1
- Genetic Counselors
- Tell me about your experience
- What do they need to know?
- Hug them
- Ciitizen
- Count 110 + 12, let's keep going, 28 spots left!
- Panel https://www.facebook.com/cureSYNGAP1/videos/221755526409431/
- Sign up https://ciitizen.com/syngap1
- Cure
- Rarebase article https://www.rarebase.org/post/what-does-it-mean-to-find-a-cure-for-a-disease
- See episode 19. Yes, we need to reach for this
- We may not know what is coming, but we need to work for it
- One Upon a Gene
- 94 https://effieparks.com/podcast/episode-094-mike-and-nasha
- 41 https://effieparks.com/podcast/episode-41-syngap-research-fund
- Cures go through clinical trials. Get ready: https://syngap.fund/ctr - $36k!
Released:
Aug 13, 2021
Format:
Podcast episode
Titles in the series (100)
Splash & #SYNGAPlove in 3 days, DSC & BCH Grants, more ICD attention! - Episode 15 of #Syngap10 - July 18th, 2021: #SPLASH4SYNGAP is on MONDAY. 3 days until June 21st! Take photos with the flyer https://syngap.fund/love = https://www.syngapresearchfund.org/post/share-your-love-for-someone-with-syngap1-for-splash4syngap Use hashtag #SYNGAPlove & #Splash4SYNGAP DS... by SynGAP10 weekly 10 minute updates on SYNGAP1