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Webinars,  Mugs, Blog, GCs, Ciitizen, Cure, OUAG, CTR

Webinars,  Mugs, Blog, GCs, Ciitizen, Cure, OUAG, CTR

FromSynGAP10 weekly 10 minute updates on SYNGAP1


Webinars,  Mugs, Blog, GCs, Ciitizen, Cure, OUAG, CTR

FromSynGAP10 weekly 10 minute updates on SYNGAP1

ratings:
Length:
14 minutes
Released:
Aug 13, 2021
Format:
Podcast episode

Description

Episode 22 of #Syngap10 - August 13th, 2021
- Webinars
     -https://Syngap.fund/eduardo  August 19 at 10 am PST
     -https://Syngap.fund/ana  Sept 2 at 10 am PST
- Mugs mugs mugs
     -https://twitter.com/AAledo/status/1426207246149636099 
- Blog: Genetics article is a must read for new families 
     - https://www.syngapresearchfund.org/post/what-should-i-ask-in-my-genetics-appointment-for-syngap1 
- Genetic Counselors
     - Tell me about your experience
     - What do they need to know?
     - Hug them
- Ciitizen
     - Count 110 + 12, let's keep going, 28 spots left!
     - Panel https://www.facebook.com/cureSYNGAP1/videos/221755526409431/
     - Sign up https://ciitizen.com/syngap1 
- Cure
     - Rarebase article https://www.rarebase.org/post/what-does-it-mean-to-find-a-cure-for-a-disease 
     - See episode 19. Yes, we need to reach for this
     - We may not know what is coming, but we need to work for it
 
- One Upon a Gene
     - 94 https://effieparks.com/podcast/episode-094-mike-and-nasha 
     - 41 https://effieparks.com/podcast/episode-41-syngap-research-fund

- Cures go through clinical trials. Get ready: https://syngap.fund/ctr - $36k!
Released:
Aug 13, 2021
Format:
Podcast episode

Titles in the series (100)

Over 900 families are caring for a loved one with the rare disease ”SynGAP” resulting from a variant of the SYNGAP1 gene. This 10 minute weekly podcast is for them. A quick summary of the latest news in the space. The host is Mike Graglia, co-founder & managing director of the SynGAP Research Fund. SRF is a parent-led, all volunteer public charity in the US that strives to accelerate research into treatments for SYNGAP1 so that we can help our loved ones in a timeframe that matters. Learn more at https://www.syngapresearchfund.org/