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    Inspiring your community and raising awareness for SYNGAP1

    Inspiring your community and raising awareness for SYNGAP1

    FromSynGAP10 weekly 10 minute updates on SYNGAP1

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    Inspiring your community and raising awareness for SYNGAP1

    FromSynGAP10 weekly 10 minute updates on SYNGAP1

    ratings:
    Length:
    10 minutes
    Released:
    Oct 8, 2021
    Format:
    Podcast episode

    Description

    - Cannonball’s last day TODAY. Three dads driving across the US. syngap.fund/cb
    - Family fundraiser: syngap.fund/jansen
    - Consider donating to our fundraiser for RareBase. syngap.fund/rb
    - SYNGAP1 Patient Voice Publication. syngap.fund/pvp
    #F78A1 #ICD10 #UFDcure #Syngap #epilepsy #autism #intellectualdisability #id #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #Genetics #Pediatrics
    Released:
    Oct 8, 2021
    Format:
    Podcast episode

    Titles in the series (100)

    Over 900 families are caring for a loved one with the rare disease ”SynGAP” resulting from a variant of the SYNGAP1 gene. This 10 minute weekly podcast is for them. A quick summary of the latest news in the space. The host is Mike Graglia, co-founder & managing director of the SynGAP Research Fund. SRF is a parent-led, all volunteer public charity in the US that strives to accelerate research into treatments for SYNGAP1 so that we can help our loved ones in a timeframe that matters. Learn more at https://www.syngapresearchfund.org/