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Gala. Webinar. Crypto SunBlocks.  ICD 10 AND 11.  Thank you.  Sign up for Ciitizen by 11/15/21.

Gala. Webinar. Crypto SunBlocks. ICD 10 AND 11. Thank you. Sign up for Ciitizen by 11/15/21.

FromSynGAP10 weekly 10 minute updates on SYNGAP1


Gala. Webinar. Crypto SunBlocks. ICD 10 AND 11. Thank you. Sign up for Ciitizen by 11/15/21.

FromSynGAP10 weekly 10 minute updates on SYNGAP1

ratings:
Length:
10 minutes
Released:
Oct 22, 2021
Format:
Podcast episode

Description

Happenings
Tomorrow is the GALA https://syngap.fund/gala 
In two Thursdays! Investigating the functional single cell biology of SYNGAP1 pathways Thursday, November 4th Register: http://Syngap.Fund/mc 
NOW (Crypto Art Auction) https://syngap.fund/sungap 
 
ICDs & Medical Care
- Corey ICD-10 issue https://syngap.fund/F78A1
- ICD-11 is happening too!  Not kidding: https://www.syngapresearchfund.org/post/icd-11-is-coming-soon-and-we-need-your-help
- Medical Considerations Guide is up! www.syngapresearchfund.org/families/doctors 

Thank yous
- Thank you to Ashley and Forbes for giving SRF some air time! 
https://www.forbes.com/sites/kevindowd/2021/10/20/after-helping-pfizer-speed-up-its-vaccine-trials-saama-strikes-a-430-million-deal-with-carlyle/ 
- Thank you to Ira for the opportunity, longer interview today on Potential, Progress, Possibilities, on https://syngap.fund/mike  or directly at https://youtu.be/RGnStUPmUkI 
- Spectrum for featuring two SRF Grantees work. https://www.spectrumnews.org/news/autism-linked-gene-syngap1-molds-synaptic-plasticity-learning/
- Thank you to Jansen’s parents for going big on this fundraiser:
https://syngap.fund/Jansen $90k+

Data Deadlines
- Sign up for #Ciitizen, we have until November 15 to be in the next release: https://www.ciitizen.com/syngap1 
- December 3rd is the third annual SYNAPSE Roundtable #SynapseRT https://www.Syngap.fund/RT3 
 
etc.
- What is SYNGAP1?  https://www.syngapresearchfund.org/home/what-is-syngap1 
- Sign up for this 10 minute #podcast #SYNGAP10 here https://syngap.fund/10 
#F78A1 #ICD10 #ICD11 #Syngap1 #SYNGAP #SUNGAP #epilepsy #autism #intellectualdisability #id #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #Genetics #Pediatrics

Episode 32.
Released:
Oct 22, 2021
Format:
Podcast episode

Titles in the series (100)

Over 900 families are caring for a loved one with the rare disease ”SynGAP” resulting from a variant of the SYNGAP1 gene. This 10 minute weekly podcast is for them. A quick summary of the latest news in the space. The host is Mike Graglia, co-founder & managing director of the SynGAP Research Fund. SRF is a parent-led, all volunteer public charity in the US that strives to accelerate research into treatments for SYNGAP1 so that we can help our loved ones in a timeframe that matters. Learn more at https://www.syngapresearchfund.org/