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    Support SRF this GivingTuesday! With guest host, Caitlin Kaspar, Syngap sibling, nonprofit professional

    Support SRF this GivingTuesday! With guest host, Caitlin Kaspar, Syngap sibling, nonprofit professional

    FromSynGAP10 weekly 10 minute updates on SYNGAP1

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    Support SRF this GivingTuesday! With guest host, Caitlin Kaspar, Syngap sibling, nonprofit professional

    FromSynGAP10 weekly 10 minute updates on SYNGAP1

    ratings:
    Length:
    10 minutes
    Released:
    Nov 26, 2021
    Format:
    Podcast episode

    Description

    Support SRF this GivingTuesday! With guest host, Caitlin Kaspar, Syngap sibling, nonprofit professional
    - Getting diagnosed with Syngap1 as an adult 
    - It’s a fact; nonprofits have overhead 
       - SRF founders cover all overhead! www.syngapresearchfund.org/post/7-reasons-smartdonors-fight-syngap1-via-srf 
       - SRF is all about transparency syngap.fund/finance
       - SRF has 600K out in grants in 2021 syngap.fund/grants 
    - End of Year Giving
    - Shop and donate at Amazon Smile bit.ly/SRF_Smile 
    - GivingTuesday Nov 30 syngap.fund/gt21
    - End of year giving letter created for families to share syngap.fund/eoy
     
    Episode 37 - November 26th, 2021
    https://www.syngapresearchfund.org/syngap10-podcast

    #overhead #ciitizen #givingtuesday #adultswithdisabilities #leadership #GlobalGenes #minted #Syngap #epilepsy #autism #intellectualdisability #id #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #Genetics 
    Released:
    Nov 26, 2021
    Format:
    Podcast episode

    Titles in the series (100)

    Over 900 families are caring for a loved one with the rare disease ”SynGAP” resulting from a variant of the SYNGAP1 gene. This 10 minute weekly podcast is for them. A quick summary of the latest news in the space. The host is Mike Graglia, co-founder & managing director of the SynGAP Research Fund. SRF is a parent-led, all volunteer public charity in the US that strives to accelerate research into treatments for SYNGAP1 so that we can help our loved ones in a timeframe that matters. Learn more at https://www.syngapresearchfund.org/