10 min listen
How to tell your family about SYNGAP1
How to tell your family about SYNGAP1
ratings:
Length:
10 minutes
Released:
Jan 7, 2022
Format:
Podcast episode
Description
How to tell your family about SYNGAP1
As you process your loved ones’ recent SYNGAP diagnosis, when do you tell your family? How?
When? As soon as you can!
How, well that’s what we talk about today:
This is a big deal, let’s not minimize it.
I need your help
Learn with me
Fight insurance with me
Help me rearrange my life
Help with my SYNGAPian or their siblings
Jump into my life, don’t give me space
Raise funds with me to help bring therapies and cure closer to reality
- Raise funds at https://syngap.fund/give
- Sign up for this 10 minute #podcast #SYNGAP10 here https://syngap.fund/10 if you want a direct link for Apple: https://syngap.fund/10a
Episode 42 of #Syngap10 - January 7, 2022
#family #thetalk #F78A1 #Syngap #Syngap1 #epilepsy #autism #intellectualdisability #id #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #Genetics
As you process your loved ones’ recent SYNGAP diagnosis, when do you tell your family? How?
When? As soon as you can!
How, well that’s what we talk about today:
This is a big deal, let’s not minimize it.
I need your help
Learn with me
Fight insurance with me
Help me rearrange my life
Help with my SYNGAPian or their siblings
Jump into my life, don’t give me space
Raise funds with me to help bring therapies and cure closer to reality
- Raise funds at https://syngap.fund/give
- Sign up for this 10 minute #podcast #SYNGAP10 here https://syngap.fund/10 if you want a direct link for Apple: https://syngap.fund/10a
Episode 42 of #Syngap10 - January 7, 2022
#family #thetalk #F78A1 #Syngap #Syngap1 #epilepsy #autism #intellectualdisability #id #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #Genetics
Released:
Jan 7, 2022
Format:
Podcast episode
Titles in the series (100)
Splash & #SYNGAPlove in 3 days, DSC & BCH Grants, more ICD attention! - Episode 15 of #Syngap10 - July 18th, 2021: #SPLASH4SYNGAP is on MONDAY. 3 days until June 21st! Take photos with the flyer https://syngap.fund/love = https://www.syngapresearchfund.org/post/share-your-love-for-someone-with-syngap1-for-splash4syngap Use hashtag #SYNGAPlove & #Splash4SYNGAP DS... by SynGAP10 weekly 10 minute updates on SYNGAP1