This week I discuss how to make connections and utilize every resource available to you as a rare disease parent (and there are many!) to help your children thrive.  A must listen for any parents at the start of a new diagnosis not knowing where to turn first.https://www.sanofi.com/en/media-room/press-releases/2022/2022-02-09-17-00-00-2382138https://wyldernation.org/resources/https://rarediseases.org/https://nnpdf.org/https://www.confessionsofararediseasemama.com/Learn more about my children's fight with ASMD and donate to our cause:https://www.saveromanandstella.com/Follow on instagram: https://www.instagram.com/confessionsofararediseasemama/