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FAQs for SRF’s SYNGAP1 Conference 2023  #SYNGAP1 #SRFconference #Orlando  #S10e109

FAQs for SRF’s SYNGAP1 Conference 2023  #SYNGAP1 #SRFconference #Orlando  #S10e109

FromSynGAP10 weekly 10 minute updates on SYNGAP1


FAQs for SRF’s SYNGAP1 Conference 2023  #SYNGAP1 #SRFconference #Orlando  #S10e109

FromSynGAP10 weekly 10 minute updates on SYNGAP1

ratings:
Length:
14 minutes
Released:
Jul 20, 2023
Format:
Podcast episode

Description

Guest Hosts: Ashley Frye & Lauren Perry
 
THE BASICS
Who: Everyone! Families (including extended), caregivers, scientists, industry reps. 
What: SRF’s 2nd Annual SYNGAP1 Conference. 
- Registration link: Syngap.Fund/2023ConfReg
Where: Orlando, FLORIDA! Embassy Suites by Hilton Orlando International Drive Convention Center. 
- Room block:  https://Syngap.Fund/2023hotel
When: Thursday, November 30th and Friday, December 1st, 2023. *Sea World outing is the Saturday following the conference. More to come on that. 
Why: Once in a year opportunity to be in the same room with multiple Syngap families from not only around the US but around the world! 
T-SHIRTS: https://www.bonfire.com/srf-syngap1-conference-2023/ 

Volunteer with SRF! Info@SyngapResearchFund.org 
This is a podcast: subscribe to and rate this 10 minute #podcast #SYNGAP10 here 
- https://www.syngapresearchfund.org/syngap10-podcast

Apple podcasts: 
https://podcasts.apple.com/us/podcast/syngap10-weekly-10-minute-updates-on-syngap1-video/id1560389818
Episode 109 of #Syngap10 - July 20, 2023
#epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #GeneChat
Released:
Jul 20, 2023
Format:
Podcast episode

Titles in the series (100)

Over 900 families are caring for a loved one with the rare disease ”SynGAP” resulting from a variant of the SYNGAP1 gene. This 10 minute weekly podcast is for them. A quick summary of the latest news in the space. The host is Mike Graglia, co-founder & managing director of the SynGAP Research Fund. SRF is a parent-led, all volunteer public charity in the US that strives to accelerate research into treatments for SYNGAP1 so that we can help our loved ones in a timeframe that matters. Learn more at https://www.syngapresearchfund.org/