E144: Gut motility in POTS with Dr. Linda Nguyen

Trailer: Learn about The POTScast presented by Standing Up to POTS, and what we hope to accomplish for our listeners by The POTScast

1 min listen

E2: POTS Diary with Lily, Inspiration for SUTP: Meet Lily, and listen to her journey through POTS. She was healthy and energetic until she got mono at age 10, and has been sick ever since. Lily was the inspiration for Standing Up to POTS. She's 19 now, and doing better. Her message? Never give up! Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/ Medical Disclaimer: The information provided here is not intended to serve as professional me by The POTScast

29 min listen

E22: POTS Diary with Dysautonomia Support Network President Brooke O'Shea: Brooke O'Shea is the current President of the Dysautonomia Support Network, and mother of two daughters with Ehlers-Danlos Syndrome and one with POTS. This is a really honest episode of trials and tribulations, silver linings and advocacy. We hope you enjoy it! Check out the materials on the DSN website: https://www.dysautonomiasupport.org/ You can read the transcript for this episode here: https://tinyurl.com/j766wbm5 Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you love The POTScast and would like to help defray the costs associated with creating these episodes, please donate at: https://www.standinguptopots.org/donate Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standi by The POTScast

46 min listen

E15: Quality of Life in POTS with Dr. Cathy Pederson: Quality of life can be negatively impacted by chronic illnesses like POTS. Please join us for an honest discussion of quality of life based on the scientific literature and personal experience. Trigger warning: this episode gets heavy at times, and discusses suicide as related to poor quality of life in POTS patients. Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! Links referenced in this episode: Health-Related Quality of Life and Suicide Risk in Postural Tachycardia Syndrome CDC Healthy Days Questionnaire Standing Up to POTS page on Suicide Prevention You can read the transcript for this episode here: https://tinyurl.com/3ps5jzws Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support by The POTScast

52 min listen

E5: POTS Diary of Lindsay from California: Join us to listen to Lindsay's 10+ year journey with POTS, and how she has found different ways to accomplish her goals. Her story is inspirational! Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/ Medical Disclaimer: The information provided here is by The POTScast

42 min listen

E21: Mast Cells Causing Mayhem with Doctor of Naturopathy Beth O'Hara: This is the best explanation we have heard about mast cells, mast cell activation syndrome, and how they relate to POTS and the hypermobile form of Ehlers-Danlos Syndrome. A POTS, EDS, and MCAS patient herself, Beth O'Hara actively seeks understanding and treatment of issues related to complex medical issues like mast cell activation syndrome. What a great resource! You can find her website at www.mastcell360.com You can read the transcript for this episode here: https://tinyurl.com/4uprh3ns Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you love The POTScast and would like to help defray the costs associated with creating these episodes, please donate at: https://www.standinguptopots.org/donate Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.face by The POTScast

51 min listen

E7: POTS and Orthostatic Intolerance with Dr. Cathy Pederson: Orthostatic intolerance is related to many symptoms of POTS. Join us for an overview of what contributes to the body's inability to be upright in POTS patients and what you might try to decrease symptoms. Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! You can access the transcript for this episode here: https://1drv.ms/w/s!Ag27qqS6ODzRmT8SNssTyik6V4Zo?e=d5Xi7D Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://ww by The POTScast

41 min listen

E16: POTS Diary with Rob from Alabama: Meet Rob, a POTS patient whose symptoms became problematic in his early 20s. He found that body building helped him to control his symptoms, and got him off of his POTS meds (for now). Rob shared his story with us because he wants other young men with POTS to feel less alone. You can read the transcript for this episode here: https://tinyurl.com/4h5t4kyv Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.orgFacebook: https://www.facebook.com/standinguptopots/Instagram: https://www.instagram.com/standinguptopots/Twitter: https://twitter.com/POTSActivistPintrest: https://www.pinterest.com/TheStandingUpToPOTS/ by The POTScast

40 min listen

E1: What is Postural Orthostatic Tachycardia Syndrome (POTS)? with Dr. Cathy Pederson: POTS is a chronic invisible illness that can be quite debilitating. Join us for an overview of common POTS symptoms, triggers, and possible treatment options. We will also describe the Standing Test which is often used to diagnose POTS. Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/ Medical Disclaimer: The information provided here is not intended to by The POTScast

40 min listen

E0: POTScast Introduction: Meet the three members of the Standing Up to POTS Board of Directors who will serve as your guides through postural orthostatic tachycardia syndrome via The POTScast. In this short episode, meet Carly Berna, Cathy Pederson, and Jill Brook. Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.orgFacebook: https://www.facebook.com/standinguptopots/Instagram: https://www.instagram.com/standinguptopots/Twitter: https://twitter.com/POTSActivistPintrest: https://www.pinterest.com/TheStandingUpToPOTS/ Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. S by The POTScast

4 min listen

E8: POTS Diary with Carly from Arizona: Join us to meet Carly, a member of the Standing Up to POTS Board of Directors and POTS patient herself. Carly's POTS journey hit the lowest of lows, but with the right medications and a strict exercise regime, she is now thriving. We hope you will listen to her story! Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! Read the transcript here: https://tinyurl.com/9v7jd739 Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.co by The POTScast

26 min listen

E18: Breathing Issues in POTS and COVID Long Haulers with physical therapist Noah Greenspan: Meet Dr. Noah Greenspan who worked with many COVID patients turned long haulers in the pandemic's epicenter, New York City. Dr. Greenspan describes his work with these patients with a particular focus on breathing issues, often seen in POTS patients as well. Join us for this great episode! Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! You can read the transcript for this episode here: https://tinyurl.com/yde5e3z7 Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate Find out more about Standing Up to POTS! Check us out on our Website: www.standingu by The POTScast

42 min listen

E42: POTSmom Linda from Pennsylvania: Linda's daughter has perhaps had POTS all of her life, but the impact of the illness became more apparent in her teen years. Linda describes the impact of POTS from a parent's perspective, and articulates what many POTS parents are often thinking. Hunting for a practitioner who can help. Emergency department visits during flares. Supporting a child with POTS daily. We are so glad that she shared her journey with us here! Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standingupt by The POTScast

37 min listen

E11: School Accommodations for Chronically Ill K-12 Students with Dr. Brian Yontz and Dr. Cathy Pederson: This episodes discusses the use of 504 (medical disability) and IEP (individualized educational plans) for students who need classroom accommodations. Dr. Brian Yontz speaks from the perspective of education policy and what the schools can do to help these children, while Dr. Pederson speaks as a POTS mom about her daughter's experience with K-12 schools. Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! You can read a transcript of this episode here: https://tinyurl.com/2t4yn9bz Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate Find o by The POTScast

42 min listen

E13: POTS, Small Intestine Bacterial Overgrowth (SIBO) and Low Dose Naltrexone (LDN): Dr. Leonard Weinstock is a gastroenterologist who specializes in patients with a variety of syndromes: postural orthostatic tachycardia syndrome, Ehlers-Danlos syndrome, mast cell activation syndrome, irritable bowel syndrome and more. Join us for this fascinating interview on gastrointestinal issues related to these syndromes, with a focus on small intestine bacterial overgrowth (SIBO). He also discusses the use of low dose naltrexone (LDN) in his practice. If you would like to see that article that Dr. Weinstock and Jill discuss in this episode, click here: https://casereports.bmj.com/content/2018/bcr-2017-221405.full You can read the transcript for this episode here: https://tinyurl.com/tfcm9dty Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support by The POTScast

53 min listen

E35: POTS Diary with Mike from Arizona - from bedbound to the basketball court: Mike is a data analytics specialist, dad, and POTS patient. His symptoms were varied and devastating, but he has methodically studied his own body's reaction to various stressors and found his way back to normal function. This is an inspirational episode highlighting the helpfulness of observation and self-discipline. We hope you will listen! You can read the transcript for this episode here: https://tinyurl.com/3dncyzju Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/stan by The POTScast

46 min listen

E3: Occupational Therapy Tips for POTS Patients with occupational therapist Joanna Behm: Meet Joanna Behm, a POTS patient and occupational therapist, who shares some great tips to improve the quality of life for people with POTS and hypermobile disorders. We think that you will walk away from this episode with a new idea to try! Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/ Medical Disclaimer: The information provided here is not inte by The POTScast

38 min listen

8th Annual Standing Up to POTS 5K/2K - in person AND virtual: Standing Up to POTS' largest fundraiser of the year is our annual 5K/2K. For the first time, we are offering both an in-person version at Wittenberg University in Springfield, Ohio on October 30, 2021 and a virtual 5K/2K anywhere at your convenience. We hope that you will join us in this event! You can register at https://www.standinguptopots.org/annual-5k by The POTScast

2 min listen

E4: Autonomic Nervous System 101 with Dr. Cathy Pederson: POTS is the most common form of dysautonomia, and most of its symptoms are a result of dysregulation of the autonomic nervous system. Don't know what that is or why it matters? Join us for this episode to find out how it regulates automatic bodily functions like heart rate and blood pressure! Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/ Medical Disclaimer: The information prov by The POTScast

40 min listen

E24: POTS Diary with POTSpouse Mike B. from California: We hope you enjoy this charming episode where Jill interviews her husband, Mike, about his experience dealing with her chronic illness. His support and innovation to make her life easier and more productive is truly inspiring! You can read the transcript for this episode here: https://tinyurl.com/fczt2ura Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you love The POTScast and would like to help defray the costs associated with creating these episodes, please donate at: https://www.standinguptopots.org/donate Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/ Medical Disclaimer: The by The POTScast

41 min listen

E58: Improving Gut Health with Nutritionist Jill Brook: Have you ever wondering how leaky gut, autoimmunity, and the microbiome are related? If so, this is the episode for you as Jill discusses ways to vary your diet to improve gut health naturally and why that's important. You can read the transcript for this episode here: https://tinyurl.com/2pmnud7v Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pint by The POTScast

37 min listen

E10: POTS Diary with Mom (Stacy) and Daughter (Emily) Power Duo: A talented ballerina, Emily's life changed in her teenage years after repeated ankle injuries that eventually led to surgery and POTS. This is an absolutely enchanting story of love, strength and resilience both for Emily and her mom Stacy. Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! You can read the transcript here: tinyurl.com/vsx22wwy Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/s by The POTScast

38 min listen

E9: POTS Down Under (Australia) with Clinical Nurse Consultant Marie-Claire Seeley: Claire Seeley is a clinical and research nurse who works with POTS patients, and is a POTS patient herself. Join us for this fabulous interview as she discusses her personal struggles with POTS and her role in treating Australian POTS patients. She has also started the first POTS nonprofit in Australia, which you can find at https://potsfoundation.org.au. Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! You can read the transcript of this episode here: https://tinyurl.com/vnuynw2d Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate Find out more about Standi by The POTScast

37 min listen

E20: POTS Diary on the social (media) side of POTS with Kate: Meet our Director of Social Media! Kate has been integral in the growth of our social media platforms and shares what she has learned about POTS from living with her severely affected sister and working with POTS patients from around the globe. Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! You can read the transcript for this episode here: https://tinyurl.com/rzx8ejew Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.orgFacebook: https://www.facebook.com/standinguptopots/Instagram: htt by The POTScast

21 min listen

E12: POTS Diary with Tanya from Utah: Meet Tanya, a mother of three who developed POTS and chronic fatigue syndrome/myalgic encephalomyelitis secondary to a mild COVID infection. Her life was turned upside when she was diagnosed with long haul syndrome. Listen to her moving story and her fight to discover her new life. You can read the transcript of this episode here: https://tinyurl.com/ym2znv3f Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUp by The POTScast

35 min listen

The POTSie who saved Christmas: Best wishes from all of your friends at Standing Up to POTS! You can read the transcript for this story here: https://tinyurl.com/2s3cz7m9 by The POTScast

5 min listen

E28: POTS Diary with Henry from the United Kingdom: Meet Henry from the UK, who suffers from POTS, EDS, and vestibular migraines. These disorders have greatly impacted his quality of life, especially in the 30 years prior to receiving a proper diagnosis. He is upbeat as he describes his experience with chronic illness, particularly as a male. You can read the transcript for this episode here: https://tinyurl.com/2p95ty97 Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you love The POTScast and would like to help defray the costs associated with creating these episodes, please donate at: https://www.standinguptopots.org/donate Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://w by The POTScast

50 min listen

E17: POTS Diary with Chelsea from Ohio: Meet Chelsea, a POTS patient who's symptoms appeared out of the blue one day when she was at work at the Cleveland Clinic. Listen to her journey to diagnosis and through treatment,as she sought to find and accept her new normal. You can read the transcript for this episode here: https://tinyurl.com/9k35pyp5 Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.orgFacebook: https://www.facebook.com/standinguptopots/Instagram: https://www.instagram.com/standinguptopots/Twitter: https://twitter.com/POTSActivistPintrest: https://www.pinterest.com/TheStandingUpToPOTS/ Medical Disclaimer: The information provided he by The POTScast

36 min listen

E6: Hypermobility Disorders and Chronic Pain with Dr. Linda Bluestein: Please join us for an interview with Dr. Linda Bluestein, an anesthesiologist and pain specialist who is a hypermobility patient herself. This is a great conversation about pain management and living with Ehlers-Danlos syndrome and other hypermobility disorders. Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! You can read the transcript here: https://1drv.ms/w/s!Ag27qqS6ODzRmTyHDQfgjNzcwuUO?e=rKAwMJ Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.face by The POTScast

42 min listen

E40: Misbehaving Mast Cells with Dr. Lawrence Afrin: Dr. Afrin, a world renowned mast cell researcher and clinician, shares his insights on how misbehaving mast cells could account for a variety of POTS symptoms including the famous POTS flares. We hope you will join us! His book is Never Bet Against Occam: Mast Cell Activation Disease and the Modern Epidemics of Chronic Illness and Medical Complexity You can read the transcript for this episode here: https://tinyurl.com/pmdj6z79 Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.fa by The POTScast

53 min listen

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E144: Gut motility in POTS with Dr. Linda Nguyen

E144: Gut motility in POTS with Dr. Linda Nguyen

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