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716. Genetic Study of AFM

716. Genetic Study of AFM

FromAsk the Expert


716. Genetic Study of AFM

FromAsk the Expert

ratings:
Length:
39 minutes
Released:
Nov 14, 2019
Format:
Podcast episode

Description

The Siegel Rare Neuroimmune Association (SRNA) is joined by Priya Duggal, PhD, MPH to discuss the Genetic Study of Acute Flaccid Myelitis (AFM) being conducted at Johns Hopkins. Dr. Duggal discusses the eligibility of participants for the study, the process for how to enroll, and what to expect as a participant. She also discusses what researchers are hoping to learn about the genetic aspect of AFM and how it will inform the way AFM is treated. Finally, Dr. Duggal describes the processes she uses to keep genetic and other personal information secure, so that the information will never be used against participants. To enroll in the Johns Hopkins Genetic Study of AFM, email Dr. Duggal at pduggal@jhu.edu.
Released:
Nov 14, 2019
Format:
Podcast episode

Titles in the series (100)

The goal of our “Ask the Expert” podcast series is to share the latest research and information on rare neuroimmune disorders and provide an avenue for individuals diagnosed with these disorders and their family members to ask questions to experts who specialize in these disorders. The podcasts are moderated based on questions submitted by our community. We would like to hear from you. If there are topics that you would like us to address in our podcasts, you can share your thoughts by sending an email to info@wearesrna.org and please use SRNA Podcast in the subject.