Timestamps:0:00 Intro01:01 What is a patient-scientist? 01:36 What’s the perspective of value they can bring to the table?03:57 What has surprised you the most about this experience of being a patient-scientist?08:05 Since you have shared this, what has been your experience interacting with the research community?08:57 What are your reflections about how the medical community should understand about developing these relationships, seeking out or welcoming patient scientists in their research, interest or questions?10:46 What’s been your own experience when you go to patient or research conferences, what is your experience like in those situations given you’re on both sides? 12:34 OutroResources:TEDx: Researching Your Own DiseaseSociety of Patient Scientists