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Meetings Matter. Join this community at the #SyngapConf. The Gala was a hit (again).  And our report from #PCEM2023.  Vicky’s at #Bio -  #S10e120

Meetings Matter. Join this community at the #SyngapConf. The Gala was a hit (again). And our report from #PCEM2023. Vicky’s at #Bio - #S10e120

FromSynGAP10 weekly 10 minute updates on SYNGAP1


Meetings Matter. Join this community at the #SyngapConf. The Gala was a hit (again). And our report from #PCEM2023. Vicky’s at #Bio - #S10e120

FromSynGAP10 weekly 10 minute updates on SYNGAP1

ratings:
Length:
12 minutes
Released:
Oct 24, 2023
Format:
Podcast episode

Description

#SyngapConf Conference Agenda Announced!
https://www.syngapresearchfund.org/post/uniting-for-progress-the-fifth-annual-syngap1-conference-hosted-by-syngap-research-fund-srf-will-take-place-november-30th-in-orlando-florida-syngapconf 
 
Register for the Conference!
37 Days until the Conference - Sign up by Halloween.
https://secure.givelively.org/event/syngap-research-fund-incorporated/syngap1-conference-2023-hosted-by-syngap-research-fund-srf
 
Dinner is Separate - Join us!
https://secure.givelively.org/event/syngap-research-fund-incorporated/syngap1-conference-2023-caregiver-dinner 
 
Nancy is a gem
https://www.syngapresearchfund.org/podcast-episodes/syngap1-stories-episode-020-nancy-kessler 
 
Gala was a huge success
https://www.syngapresearchfund.org/families/caren-leib-gala-syngap-research-fund 
 
#PCEM2023 was fun
https://x.com/Science_Hood/status/1716471587275227389
 
Vicky’s at #BIOPatientSummit23 
https://x.com/VickyAArteaga/status/1716506175024361836
https://x.com/VickyAArteaga/status/1716176260244611354
 
Give us 5 stars everywhere.  
https://podcasts.apple.com/us/channel/syngap1-podcasts-by-srf/id6464522917 
 
This is a podcast subscribe!
https://podcasts.apple.com/us/podcast/syngap10-weekly-10-minute-updates-on-syngap1/id1560389818

Episode 120 of #Syngap10 - October 24, 2023
#epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #GeneChat
Released:
Oct 24, 2023
Format:
Podcast episode

Titles in the series (100)

Over 900 families are caring for a loved one with the rare disease ”SynGAP” resulting from a variant of the SYNGAP1 gene. This 10 minute weekly podcast is for them. A quick summary of the latest news in the space. The host is Mike Graglia, co-founder & managing director of the SynGAP Research Fund. SRF is a parent-led, all volunteer public charity in the US that strives to accelerate research into treatments for SYNGAP1 so that we can help our loved ones in a timeframe that matters. Learn more at https://www.syngapresearchfund.org/