Show Notes:
In episode 6, we turn the tables on our host. Ashley talks about volunteering for SynGAP Research Fund, organizing the SYNGAP1 Conference 2023 hosted by SRF, and the first SynGAP Paddle Slap coming up on May 6 in Oxford, MS.
SYNGAP1 Conference 2023, hosted by SRF - Hotel Reservations
SynGAP Paddle Slap - https://Syngap.Fund/Paddle23
  USA Pickleball
  The Oxford Park Commission
  The Farmstead, Oxford, MS
  Live Band - Rocket 88
  Bounce Castles donated by Blue Line Inflatables
Follow ⁠⁠⁠Ashley Frye⁠⁠⁠:
  ⁠⁠⁠Facebook⁠⁠⁠
  ⁠⁠⁠LinkedIn⁠⁠⁠
  ⁠⁠⁠Instagram⁠⁠⁠
Nathan’s Warrior Story: ⁠⁠⁠https://www.syngapresearchfund.org/syngap-warrior/nathan⁠⁠⁠
SynGAP Stories Episode 001 - Ashley Frye
SynGAP Stories Episode 005 - Panda
Panda’s News Story:  Nathan’s Dog
Cannonball For A Cure
What is SYNGAP1: ⁠⁠https://www.syngapresearchfund.org/home/what-is-syngap1⁠⁠
Syngap Research Fund: ⁠⁠https://www.syngapresearchfund.org/⁠⁠
Donate: ⁠⁠https://Syngap.Fund/Donate⁠⁠
⁠⁠SYNGAP1 & Epilepsy⁠⁠
⁠⁠Why Getting a Genetic Diagnosis Matters⁠⁠
⁠⁠How to Get Free Genetic Testing⁠⁠
⁠⁠Special Needs Trusts⁠⁠
Connect with SRF (@curesyngap1):
  ⁠⁠Facebook⁠⁠
  ⁠⁠Twitter⁠⁠
  ⁠⁠Instagram⁠⁠
  ⁠⁠LinkedIn⁠⁠
  ⁠⁠TikTok⁠⁠
  ⁠⁠SYNGAP10 Weekly Video Podcast⁠⁠ w/ Mike
Wednesday SRF Family Zoom Meeting:
⁠⁠Syngap.Fund/SRFfam⁠⁠ Meeting ID - 972 0059 2178 Passcode - 848417
Comments: ed@syngapresearchfund.org
Music: ⁠⁠In the Forest... by Lesfm from Pixabay ⁠⁠
Episode 006 SynGAP Stories, April 18, 2023
#SyngapStoriesPaddleSlap #SRFConference #Pickleball #Volunteer #Syngap #SYNGAP1 #epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology