Show Notes:
In episode 7, SYNGAP1 Dad Peter Halliburton joins Ashley to discuss volunteering with SRF in the "early days" compared to now, receiving his son Carter's diagnosis, dealing with seizures, changing doorknobs, and appreciating the joys in Carter's daily life.
Carter's Warrior Story
Follow Peter Halliburton:
Instagram
Twitter
LinkedIn
Contact Peter at peter@curesyngap1.org.
More about the Halliburton Family:
Halliburton Family Video
Cook Children's Hospital Article
Blog by Peter - 8 Months on the Rollercoaster of - Mostly - Uncontrolled Epilepsy
Blog by Peter - What Do You Mean, "Cure SYNGAP1"
⁠⁠Cannonball For A Cure⁠
Follow ⁠⁠⁠⁠Ashley Frye⁠⁠⁠⁠:
⁠⁠⁠⁠LinkedIn⁠⁠⁠⁠
⁠Facebook⁠
⁠⁠⁠⁠Instagram⁠⁠⁠⁠
Nathan’s Warrior Story
SynGAP Stories ⁠Episode 001⁠ - Ashley Frye
SynGAP Stories ⁠Episode 005⁠ - Panda
Panda’s News Story:  ⁠Nathan’s Dog⁠
SRF & SYNGAP1 Info:⁠
What is SYNGAP1? ⁠
Syngap Research Fund
Donate: ⁠⁠⁠https://Syngap.Fund/Donate⁠⁠⁠
SYNGAP1 & Epilepsy⁠⁠⁠
Why Getting a Genetic Diagnosis Matters⁠⁠⁠
How to Get Free Genetic Testing⁠⁠⁠
⁠⁠⁠ Special Needs Trusts⁠⁠⁠
Connect with SRF (@curesyngap1):
  ⁠⁠⁠Facebook⁠⁠⁠
  ⁠⁠⁠Twitter⁠⁠⁠
  ⁠⁠⁠Instagram⁠⁠⁠
  ⁠⁠⁠LinkedIn⁠⁠⁠
  ⁠⁠⁠TikTok⁠⁠⁠
  ⁠⁠⁠SYNGAP10 Weekly Video Podcast⁠⁠⁠ w/ Mike
SYNGAP1 Conference 2023, hosted by SRF - ⁠⁠Hotel Reservations⁠⁠
Wednesday SRF Family Zoom Meeting:
⁠⁠⁠Syngap.Fund/SRFfam⁠⁠⁠ Meeting ID - 972 0059 2178 Passcode - 848417
Comments: ed@syngapresearchfund.org
Music: ⁠⁠⁠In the Forest... by Lesfm from Pixabay ⁠⁠
Episode 007 SynGAP Stories, May 2, 2023
#SyngapStoriesCarter #Volunteer #SRFVolunteer #Syngap #SYNGAP1 #epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology