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Summer Mini #6: The Oddly Specific Things We Grieve as Parents of Medically Complex Kids

Summer Mini #6: The Oddly Specific Things We Grieve as Parents of Medically Complex Kids

FromThe Rare Life


Summer Mini #6: The Oddly Specific Things We Grieve as Parents of Medically Complex Kids

FromThe Rare Life

ratings:
Length:
20 minutes
Released:
Jul 4, 2024
Format:
Podcast episode

Description

There’s plenty of grief that we expect as parents of medically complex kids... But what about those little pangs that seem to come out of nowhere?
In this mini episode, we’re sharing the surprising and often oddly specific things we grieve as parents of medically complex children, from missing out on birthdays to struggling at beach trips. This is one episode that will make you feel SO SEEN.
Also, huge thank you to our sponsor Functional Formularies! They make incredible, nutritious food for our tube-fed kids that’s easy to access and use. Honestly, if our kids are eating Functional Formularies formula, they’re probably eating better than us!

Links:
Visit the Functional Formularies website and get easy, nutritious, tube-friendly meals for your child!
Follow us on Instagram @the_rare_life!
Donate to the podcast or Contact me about sponsoring an episode.
Fill out our contact form to get a reminder about upcoming discussion meetings and the Skype link to join!
Follow the Facebook page.
Join the Facebook group Parents of Children with Rare Conditions.
Access the transcript on the website here.
And if you love this podcast, please leave us a rating or review in your favorite podcast app!
Released:
Jul 4, 2024
Format:
Podcast episode

Titles in the series (100)

This is the real, raw, and all the feels of loving a child with disabilities. Episodes feature parent-guests, professionals, and solo episodes with host Madeline Cheney. Their authentic conversations don’t shy away from the strong and mixed emotions that often accompany medically-complex parenting. Parents listen in to feel seen, validated, and receive much-needed solidarity. Professionals working with disabled people listen in to better understand what is often going on under the surface for a family living with disabilities.